I Get By With a Little Help from my Friends

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March 25, 2014 | 3 Comments

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  1. I think Ben is an unsung Hero. I found this site in June 2012 after being diagnosed with TN and it has been a life saver for me!
    Thank you to Red who is also a major factor in this group, suplying so much information and support to us all.
    I live in the UK and my GP and Neuroligist does not believe in bilateral TN I am suffering this every hour of the day!….. I wish they would read this site and find out how many people are suffering the same as me.

    Thank you all

    Jackie Henderson

    • Jackie, feel free to print out the article on Living With TN which is labeled “Who Gets TN” on our Face Pain Info tab. This is the largest qualitative demographics study ever published on chronic face pain and it suggests that something on the order of 25% of all face pain patients experience neurological or neuropathic pain on both sides.

      Your neurologist may be correct that the character of pain has more to do with neuropathy than neuralgia, but he is sadly mistaken if he believes that bilateral pain in some way signals an imaginary illness. If anyone ever uses the term “psychogenic” in your case, respond to them immediately and tell them they should have their mouths washed out with lye soap! There is no such thing as psychogenic pain (pain caused by emotions or thinking). Period! End of Story!

      Go in Peace and Power
      Red

  2. T thing is that even when they are proved wrong they are not willing to listen and learn from – in my case the evidence of having had to have a total hysterectomy after being told the pain was depression by a GP and a bunch of his friends at UCL with an obsession with ‘psychosomatic’ so called medicine . Instead they were frothing at the mouth, even without any soap , (I wish!)by having to admit it. my medical notes kept by them went missing but I obtained them from the hospital as evidence They included a referral letter from the GP which the hospital consultant had showed me because he was so angry with them,suggesting an operation was unnecessary He sarcastically told me he was not used to carrying out serious unnecesary operations and that if it had been done earlier less surgery and pain would have been caused.
    Power to the People and thank goodness for the internet and medics who understand the power and shared humanity of collaboration. Best wishes to everyone -in all the surreal times we are in, take care.

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