As outlined in About Us, RxISK is not a clinic or even a site of information about drugs. It’s a place where you can contribute examples of what drugs have done to you, what you have found out that seems more generally unknown, and your thoughts on a medical system – often called an industry these days – that doesn’t listen to its ‘consumers’.
Twitter, Facebook and Contact Us are good ways to establish contact if there are things you can offer. Even if you have no background in healthcare, your motivation can be worth more than the expertise of those involved in the ‘business’, and getting material from a motivated person is often worth more than the opinions of any expert.
Over time, however, as RxISK has tracked the latest information on dependence, withdrawal, PSSD and related problems, desperate people have increasingly reached out asking for input as they are about to commit suicide. There are now 50 requests per week, perhaps partly because David Healy has often responded and charged nothing for the response. This cannot be sustained.
If you have a query about a clinical condition, filing a RxISK report can help you by giving you a score that tells you something about a possible link to treatment. It can also help others. If we spot something in your report that we can help with, or you can help further with by giving a fuller report, we will get back to you.
If you have simply gone to the contact us form without filing a RxISK report and without reading any blog posts on the condition you think you have, because of the volume of reports coming in it is increasingly likely we will not respond.
If you are emailing about PSSD, we want to hear about research you’ve done. Our PSSD page lists some resources and we are committed to providing the latest information on anything we know in posts on RxISK. There is no information we are withholding or people we know who can treat this problem, and as a result we don’t do consults on this. Please keep on eye on posts for updates.
If you are emailing about dependence and withdrawal, we are interested in any discoveries you may have made. We are also committed to providing the latest information on anything we know in posts on RxISK. There is nothing we know about what causes dependence and withdrawal or how to successfully treat difficult cases other than what is in posts, so please keep an eye on posts.
We hope at some point to run a Reducing Medication Burden clinic but will not be doing so for some considerable time to come.