The Invisible Doctor

Print Friendly, PDF & Email
March 28, 2022 | 23 Comments

Comments

  1. MMMmmm

    Lucky M.
    Why lucky M?

    Because she has finally landed.

    She has landed on RxISk, the site for sore eyes, where the Riskers land who all began with the promise of riches and then led down the rabbit-hole. Where so much is promised, eternal salvation.
    We will restore you, we will heal you, we will unlock all of your demons and give you moonshine.

    Where so many have traipsed, where so many have unburdened themselves, where so many have sought a holy-grail.

    This is the stuff of nightmares, where the living die, where in the face of innocence, the cuckolded are laid bare.

    On goes the kidnapping of taking advantage.

    God knows, in the ten years since RxISk developed it’s skills

    People Acknowledgement

    RxISK acknowledges that its life source lies in the experiences of people who have not ceded the rights to explain what is happening ‘to’ them when harmed by treatments given by people on a Special Mission.

    What truly baffles me, is where are they?
    The Listeners and Seekers.

    God knows, the media has been awash with violence, homicides and suicides for donkey’s years from psychotropic medicines. Where were they, the ‘listeners and seekers’?

    Why is it that Psychiatrists, Doctors seem to live under a mat of Hessian, a mat crafted from a Bamboo, that loses them their Basic Instinct.

    They have lost any sense of a ‘Basic Instinct’ and they have lost.

    Many people were optimistic that a tide was turning, a while ago, but M, desirous of just something to end her plight, has landed in a sea of hands grappling for an air of wisdom where her voice can be heard and not swamped by an invicissitude of the cool, misplaced, cold-hearted, arrogant and the defying cauldron, of ‘out damned spot’ …

     It’s ironic because they will never be able to get the guilt off their hands.

    • Thank you, Annie, for this beautiful poem. It really moved me. And about the washing of hands, it made me think of that old anthropology book “A polluting person is always in the wrong. He has developed some wrong condition or simply crossed some line which should not have been crossed and his displacement unleashes danger for someone” (Douglas, 1966:114).

      This is how it feels like when approaching a medical doctor with the problem of withdrawal. I am the polluting person. I have become some sort of dirt. When they labelled me with their DSM manual I transitioned to an unclean human and the process of washing me could begin. I am dirt and I am polluting their world when I complain about their chemicals. The pollution is destructive to me but not so for the health care workers. They need me to be dirty so they can keep on cleaning.

      Somewhere along this process I have transitioned to the slave. My back is bent and they are building their careers on it. They get to be productive and have meaningful lives helping others. Whereas my mind and body is easily reduced to that of the mentally ill, my task is surviving. The help just goes on, but since their cleaning involves the chemicals that keep me trapped, I will never be free.

      It’s not just the doctors, it’s the psychologists as well. Yesterday I went to my local bookstore and I noticed a name I knew, someone I used to meet at parties some 15 years ago is now one of the top people in his field so much so as he gets to publish self-help books for depressed people- in my country mental health care professionals work in teams, they influence each other, the doctors, the nurses, the therapists. My psychologist “friend” recommends Seroquel off label for sleep, and he says that 1000 mg or more is a normal dose for schizophrenia. In other words, my words: chemical lobotomy is normal and accepted also by psychologists. They are trained in feelings; I wonder how they came to believe that wiping them out was the right way to wash and clean.

      When I see my “friends” face I always think of that song “up all night to get lucky” he was always so very happy. I wonder if he knows in his heart that Seroquel takes away a human’s ability to feel happy and to feel love? Is his heart clean? The system is clean, the medical handbook is clean, so I must be the dirty one, I must be the polluting one for saying there is something wrong with their chemicals. They need me to be dirt to keep cleaning away anyway. I am grateful for my Christian faith or I do not know what I would believe in anymore, certainly not governments or nation states or the goodness of men. Democracy is supposedly what we worship in my country. Democracy has lost its meaning for me, the song within me is that of a slave: “O nobody knows who I am, who I am until the judgement morning”.

  2. How many times have we read stories in the same vein as this one by M? How many more will we read before doctors begin to realise what is going on under their noses?
    The very worst part of this whole story is the fact that M has changed doctors and countries a number of times but the attitude every single time has been the same -don’t mention withdrawal as I’m deaf to that word.
    So, after reading this tale I cannot see that encouraging patients to “find another doctor” is really going to make much difference. Maybe, instead of trying to compile a list of doctors who ‘listen and believe’ we should start naming those doctors who REFUSE to listen, REFUSE to believe and REFUSE to acknowledge the reality of withdrawal problems!

  3. Thank you M. I also find your suffering to be totally believable; having experienced the tragedy of misdiagnosed, SSRI induced AKATHISIA leading to life-changing injuries caused by psychotropic drugs. ‘Antidepressants’, ‘Antipsychotics’, ‘Mood Stabilisers’ forcibly given to our loved one, who never had any mental illness at any time. I use inverted commas as these are marketing terms masquerading as drugs alleged to have specific ‘therapeutic’ actions. They do not. Many prescribers (including myself) have been naive in believing that ghost written, manipulated clinical trials, combined with Drug Regulation Authorities, afford evidence of efficacy and ensure acceptable safety. Now I feel both patients and prescribers have been betrayed. Is it this betrayal that leads doctors to refuse to believe their patients who report to them devastating adverse drug reactions and withdrawal syndromes? Medical rejection, denial and disbelief which cause such additional suffering, and which induce despair?
    Have we forgotten the great clinical teacher’s words: “Listen to your patient S/he is telling you the diagnosis”. – (Sir William Osler). This is a basic tenet of medical practice. If we listened properly, why would we not believe? A patient intuitively knows when they are not believed. Trust is destroyed, and the crucially important doctor-patient relationship is lost, or no longer achievable. Without trust, there can be no therapeutic relationship. Without trust, we cannot learn from our patients. It is as if a dense plastic, Covid protection, check-out screen has descended between the consultation participants. Unlike a supermarket, this screen can never be removed.

    The toxicities of psychotropic drugs and their intense and protracted withdrawal syndromes appear more likely to be routinely misdiagnosed as ’emergent mental illnesses’ than to be correctly identified and safely managed. They have been reported and denied for decades. When will they ever learn?

    From Kidnapped Daughter 2.
    “Each new psychiatrist only sees the damaged person produced by the previous psychiatrist. Their imposed injuries are thus falsely interpreted as features of mental illness. The history is presumed to be as recorded, differential diagnosis is never revisited. An adverse drug reaction is, as we were told, irrelevant”.

    From another source:
    “But the most pernicious of all is that the system appears to have a complete inability to appreciate when the treatment it gives becomes the problem that it tries to treat by adding more drugs, and, if need be, detains us in order to do so”.

    I believe you M. Thank you.

    • “The toxicities of psychotropic drugs and their intense and protracted withdrawal syndromes appear more likely to be routinely misdiagnosed as ’emergent mental illnesses’ than to be correctly identified and safely managed. They have been reported and denied for decades. When will they ever learn?”

      The incredibly sad thing is that patients totally believe they are mentally ill, that their mania from coming off AP’s is another episode and that akathisia is severe anxiety and depression making people suicidal from some terrible misdeed. Even more convincing is when you get tardive akathisia when off the drugs from months, there is some psychological upset that shouldn’t kick off severe anxiety but bang – AKATHISIA starts again. The perspective then from psych and the family/friends – What have they done to be in that state… they can not then see you in any normal way without suspicion, never mind a victim who has suffered horrifically. Your relative is very lucky to have a switched-on doctor, totally knowing what happened and not ignorance full of menacing suspicion.

      • Yes Chris, very fortunate indeed. However that took some 3 – 4 years. During this time, the arrogance, ignorance (of life-threatening, adverse drug reactions) and the diagnostic incompetence of the initial ‘mainstream psychiatrists’ was beyond comprehension. They couldn’t even manage routine fluid and electrolyte balance.
        They coerced, labelled, kidnapped, incarcerated, forcibly poisoned, and were responsible for life-changing injuries. This is inexcusable. In any other area of medicine, those responsible for such abuse and mismanagement could be held to account. There was never any mental illness for them to treat, only barn-door obvious SSRI induced AKATHISIA* and then, multiple systems, psychotropic drug induced ADRs. Despite this established fact, her labels-for-life remain in her medical records, unredacted. Eleven years later, these invalid ‘diagnoses’ continue to deny her access to unbiased, accurate and conscientious medical care for any, and all subsequent illness.

        *(It was obvious to anyone if they had been taught that SSRIs/SNRIs cause akathisia but this common toxicity was hidden from prescribers for some 30 – 40 years. It appears that this lamentable lack of awareness continues, as does ignorance and denial of PSSD).

  4. I believe you. I was on that merry-go-round with doctors for years and years of pure torture. I was so desperate I made a private FB group to find out if anyone else was going through this (never thinking anyone would join). I was shocked when people started joining and sharing their stories that resembled mine.
    I joined Surviving Antidepressants Forum and other FB groups, websites, etc. and have learned so much about how to taper safely, supplements and natural remedies to help reduce symptoms, adding lots of coping skills, etc. etc.
    After 30 yrs. being on these drugs that I was told I would need for life and after these doctors damaged my central nervous system I am now completely drug free. It took many years to get off the cocktail of drugs they had me on but I can tell you, it’s worth it in the end. If you’re afraid of FB groups, join Surviving Antidepressants Forum. You can used any name you choose for privacy.

  5. This may be of no use but it is my experience getting off Seroquel.

    Two years after quitting klonopin I still had wicked insomnia. I asked for Seroquel for sleep and took it for 7 years, 25mg and never more because more made me feel terrible. It stopped working very well within the first year but seemed better than nothing and nothing else worked at that time.

    Eventually I would try to taper off. I didn’t know about liquid versions and compounding then, so I just cut the pills as best I could. I was lucky not to have akathisia or any other seriously debilitating symptoms, save insomnia.

    That last 5mg or so was impossible to quit, so I kept taking it to function. Then one day I realized I hadn’t taken it in a few days and yet had not experienced insomnia worse than my baseline (which was still awful, and by this time I had also resorted to using a small amount of cannabis).

    What had changed? Two days before the realization I’d forgotten to take Seroquel, I’d had my intestines power washed by a gastrologist. (I say power washed because I refused sedating medications and thats what I saw happen on a fun little TV).

    So I’m sharing this somewhat embarrassing story to suggest that perhaps gut health is involved in withdrawal, perhaps in a major way.

    I do consider that it may have been psychological – that I forgot to take it and was therefore unaware. But I really don’t think that’s the case. Sleeplessness usually reminded me.

    This now has me curious about fecal transplants, which may be gross, but surely no worse than the crap we were prescribed.

    • My word Laurie, this takes us in a totally different direction doesn’t it!
      Your comment came just too late for our zoom group meeting this evening – it would have made for a very interesting discussion I’m sure.
      We have shared the new post ‘The Invisible Doctor’ with the group so they will read your comment and maybe add a comment of interest in your idea.
      I have read about faecal transplants online just now and see that within the list of conditions which may possibly benefit are asthma and hayfever . I shall stick to my wheezing and sneezing etc. I think!

    • @ Laurie
      This had me looking up my medical records that I kept from October ‘98 for when I had ‘flexible sigmoidoscopy’ too but as my circumstances were different I wont go there. Think though, your hunch may have some substance.

      As 90% of the body’s serotonin is found in the gut and gut bacteria produce both serotonin and dopamine, the washout may have well been responsible. Was able to quickly find this paper (below) which shows some scientific evidence as I’ve already been down the gut biome route so know what to search for but there are many other papers about the gut biome and it effects on mental states. I wasn’t on any medication but often I could not switch off in the evening nor go to sleep and it correlated to what my guts were doing.

      Tried explaining all this to my nutritionalist but she wasn’t interested in the research I was doing to resolved it nor how I eventually resolved it (when we sometimes bumped into each other non-professionally). So other than being told I didn’t have what I didn’t think I had but my GP thought I had, it was a waste of time being referred to both the nutritionist and endoscopists. Still, I was able to watch that trip on the little TV in the endoscopy dept free of charge on the NHS and a few free cartons of liquid nutrition from the hospital. Appears from this blog, too many in healthcare still have their blinkers on with cotton buds in their ears more than twenty years on. Think I’ll shut up at this point as I’m getting annoyed again.

      Bretler, T., Weisberg, H., Koren, O. et al. The effects of antipsychotic medications on microbiome and weight gain in children and adolescents. BMC Med 17, 112 (2019). https://doi.org/10.1186/s12916-019-1346-1
      The paper doesn’t quite say this but I think one can conclude that these drugs can create a vicious circle.

      For the curious. Mikhaila Peterson did a video on Do-it-yourself Oral Fecal Microbiota Transplantation which got removed from her channel. But here it is on a different link: https://www.youtube.com/watch?v=3aDGDTp8d3A

      However, as Fecal Microbiota Transplantation (both orally or by the other route) is a bit drastic, I’d suggest reading up everything one can about how to return to a healthy gut biome just by being mindful of what one eats. Should that help with completely coming off medications also, then that’s great. If one’s biome is out of kilter due to continuing with medication then one imagines the chosen diet needs to be more strictly followed. One problem I’ve heard is that for people on some medications (those that raise blood sugars and Seroquel is one) the diets initially cause extreme sugar cravings and they need to be mentality prepared to cope with them. Maybe anti-diabetic medications could cause problems too so consult doctor first. As seems to becoming more necessary these days, it a matter of self-education and finding out what works for you. There is a lot of info available today. This video is just for example and others cover different aspects. By watching and reading enough papers one can competently tailor one’s own treatment.
      1-Week Gut Reset Diet – Meal Plan & Guide
      https://www.youtube.com/watch?v=p1XKNxoZRAE

        • @ Laurie
          Was soon feeling relaxed in the evenings but sleep was still very slow to come each evening.
          Was able to avoid the frustration arising from insomnia by adopting the frame of mind where I remembered how nice it was to lay in late on a Sunday morning back in the days when I had a hectic life and since I could now plan my days so I didn’t have to get up by a set time, then it didn’t matter how long I lay there in bed just day-dreaming. So I just lay there enjoying it. This had been totally impossible before changes to the diet, because my mind was far too busy and restless to let me relax and I suffered often from bouts of ‘restless leg syndrome’. The latter vanished as well. For someone with commitments that requires them to be up at a certain time though, adopting this frame of mind I’d agree would be nigh on impossible.

          On the subject of sleep. This may not apply to everyone but someone might find it useful.
          One thing I found out about why going to bed earlier did not help me at all. The sleep cycle is governed by three hormones. Everyone knows about the hormone melatonin inducing sleep but perhaps not realise that the level of wakefulness is governed by the other two. It has been suggested, based on research done on people with ‘Seasonal Affective Disorder’ (SAD), that these hormones are out of synchronisation with each other. The level of these other two hormones don’t start to diminish a soon as daylight fades like they should. Where as some people find taking melatonin capsules helpful, I’d rather steer clear of taking any hormones. Instead I found that if I simply wore sunglasses outside from 5 pm when the weather is sunny and if I have dimmer lights on low indoors from that time in the winter, then that helped a lot as well. Maybe, by giving the pineal gland those few extra hours to ramp up melatonin secretion from the ‘day’s average base-line’ is the reason for this. I say ‘day’s average base-line’ because sunglasses worn outdoors don’t really drop the light reaching the eyes to the level of a what appears to be a brightly lit room, so it must be (I think) the the ratio of bright-to-dark blue end of the spectrum that is important here.

          Fortunately though, this issue has almost gone now but I still do run red-filter screen app on my computers so that automatically, the screen slowly dims and it lowers the levels of the melatonin disrupting spectrum as the evening starts, without me having to remember to do anything.

          If insomnia is solely due to the discontinuation of medication then all I can suggest is finding an opportunity where one doesn’t have to get up by a certain time each day and just lay there each night (with the curtains open) and see if the body’s circadian cycle drifts back into synchronization naturally. Another possibility. Some people find if they take half the dose of their sleep aid about 90 min earlier than normal, they still fall asleep at the same time as before. I’ve looked up Seroquel and peak plasma concentration is reached after 1.5 hours with a mean terminal half-life of about 6 hours. So there is scope there for experimenting with bring half doses forwards. This may also allow the day time hormones to take over earlier the next day thus bring ones sleep pattern forward the next night.
          Where you ask “What did I do?” If you mean diet wise. I read a book by Prof Jonathan Brostoff (who was Reader in Clinical Immunology at the Middlesex Hospital School in London) three times (plus loads of other medical stuff). Then did an elimination diet (as explained in book), keeping copious notes as I went. Felt better in under two weeks! Had a few ups and down as I experimented with expanding the range of what I could eat without the problems returning but otherwise my guts didn’t give me any further problems and my head felt on a more even keel.
          Brostoff book is good from the point of view of explaining the science of what many doctors are not appreciative of, so I can recommend it. GP’s are familiar with IgE mediated allergies but too unaware how stresses on the body, be them physical, chemical (which can include pharmaceuticals) and from infections etc., can cause the body to start reacting badly to otherwise normal foods in a way that the individual (or his doctor) is unaware of. Jonathan Brostoff lays open the whole picture for the layman. His book is: “The Complete Guide to Food Allergy and Intolerance”

          • Thanks for your reply Pogo. I agree with so much of this. I rarely schedule anything before noon and as you say, it helps immensely.

            Melatonin has worked for me here and there in the past but now only makes things worse.

            Funny thing about light – I have grow lights for plant starts that I turn off when I get home from work after 10 pm. If I take any time to admire the plants I end up paying for it!

            I am definitely going to check out that book.

          • Thank you for all of your ideas and suggestions, it is really interesting. I read somewhere a woman who had struggled with Seroquel withdrawal for 5 years, she could not get off until she was put on spironolactone, she said she did not have any withdrawal symptoms after she was put on it and refers to an article about spironolactone and opioid withdrawal that says the stuff decreases the somatic signs of opiate withdrawal by blocking mineralcorticoid receptors. Anyone knows about this? or have tried this drug?

  6. 400mg of quetiapine is horrific
    ——-

    “An inquest into Dr McPhillips’ death is due to be opened at West London Coroner’s Court on April 7.”

    One to keep an eye on

    “Leading psychiatrist who helped Frankie Bridge back from the brink after she suffered breakdown dies in suspected suicide”

  7. On Wednesday we – prescribed medication withdrawal peer support Prestatyn -. had the latest of our fortnightly zoom meetings. This was a general, information sharing meeting. We discussed the post above, shared the link and concentrated on the final part of the post – about quetiapine and other drugs that prove almost impossible to quit for some people, looking for ideas to support when tapering. A good few seemed to know mirtazapine – is that the ‘go to’ drug of the moment I wonder?
    Of those, one young lady had managed to withdraw from her dose of 15mg – issued mainly for insomnia – which she had taken for 4 years, in a matter of 5 months – but had to go back on it after a couple of weeks of dreadful suffering. She has not attempted a reduction since that time and is now concentrating on the removal of her citalopram instead, following three failed attempts at withdrawing that too.
    A young man knew mirtazapine from a few years ago when he was put on it when suffering from cold turkey removal of Venlafaxine after 6 years of taking that. He had been off the venlafaxine for 5months when he started taking the mirtazapine and was able to continue full time working until 7 months later when, having had his dose doubled to 30mg he developed what he now knows to be akathisia and the dose was immediately reduced back to the original 15mg. He was taken off it,
    by a locum psychiatrist who told him that 15mg was not a therapeutic dose for mental health problems, and put on paroxetine. He was in and out of his regular job during this time but doesn’t know whether it was the removal of mirtazapine or introduction of paroxetine that accounted for this bad time. This person is still suffering many problems, both physical and mental but cannot possibly know which drug to blame due to the massive assortment he’s been on over the years.
    Another young man is in the process of withdrawing from quetiapine. He was on 300mg and has taken away 50mg in one step. So far, he is fine. He is following Mark Horowitz’s plan and expects to find reaching 150mg remaining to be the time when he will start to suffer.
    Shane, of course, has reduced his quetiapine dose from 400mg down to 125mg. He does his reductions in 25mg steps and they were horrendous. We now wonder if his change of diet (following his cholecystitis in December) could be helpful when he returns to reducing the quetiapine further. The only suggestion that Shane could provide for making matters easier in withdrawal was to accept that it takes as long as it takes – that each person is an individual and suffers in their own unique way.

    We then moved on to discuss a question posed in a previous meeting – “Has anyone tried Hyperbaric Oxygen Therapy to support withdrawal?” By this week’s meeting, one of our members had found out that an MS charity has these chambers and was lucky enough to be able to visit his local centre. There, he found that they are quite happy to support non-MS sufferers. It is roughly £20 a session and some seem to reckon that 20 sessions is a good number to have, maybe weekly, to ease the physical pains. He found that some find relief, after the completion of their block of sessions for, maybe, six months before they need a top-up. Others had found that the need for more sessions was apparent after a couple of weeks. Again, we find the usual “individual differences” I guess.
    This person is due to start his sessions as soon as his GP issues his consent for it to start. This is a matter of great interest within the group with another two people looking into two other MS centres at present. We will await our guinea pig’s reports with interest!
    When we next meet, I shall introduce your idea, Laurie, and we’ll see if there will be a willing guinea pig or two for that among us too!

    • Mary,
      Is it possible to join your zoom peer support meeting?. it would be really good I think to have a place to talk about how the drugs affect my life and also to listen to others and learn from others who struggle with these drugs and their consequences. I am one hour time difference to you – if this is not too big I would love to join your group. Thank you!

      • Hi K,
        Yes of course you can join our group. We meet fortnightly, on Wednesday at 6pm GMT.
        If you send me an email to:- ellen.hennessey@btinternet.com ( that is me, my first name is Ellen and BT like to stick to first names!) then I can get Shane to send you the link for the zoom meetings.
        See you next week.
        Mary

  8. I would like to share with you my concerns regarding the trauma caused by doctors and their effects on our ability to properly support members of our group.
    Our aim is to “support in withdrawal” – whether that is during the actual withdrawal or the suffering at the end of the withdrawing or even many months down the line.
    As we have said many times, each person’s story is different and, most times, simply LISTENING and BELIEVING and SHARING THE EXPERIENCES WE HAVE WITNESSED seem to relieve the anxiety of most. As lay people, of course, we can offer guidance as to the relevance of the symptoms suffered to the withdrawal but we cannot establish with certainty the irrelevance of a possible physical cause.
    Over the past few months, I have worked closer with one member through emails and this has revealed to me how much easier OUR work within the group would be if only we could get doctors to do a bit of ‘joined-up thinking’.
    I need to admit here that my interest is in each individual and their journey and in doing whatever I can to ease their suffering. I care very little about the drugs they have been on or the actual labels for their suffering – I merely want to be able to reassure them that their suffering is related to the trust they had in their doctors’ prescriptions. That “trust” is where it all falls down.
    This particular member of the group has a wide knowledge in the world of ‘sports health’ and, by that, understands a lot more than I do about physical ill-health.
    He has a variety of physical ailments, all of which have developed over the years of being on psychotropic drugs. At present he is being called to see a variety of experts concerning these physical ailments – which is good and in everybody’s interest. The problem arises whenever he makes enquiries as to whether or not these ailments could be linked to those drugs or his withdrawal from them. You can all imagine the response to that question!
    I believe that these conditions of his are drug related; he knows that I feel that way but accepts that I cannot, and will not, refute the possibility of other physical causes.
    He has now been told to take no more exercise than a ‘gentle walk’ by one “expert”; by a neurologist he’s told that his leg problem is due to intense tension present even when “at rest”; another expert has told him that his bladder problem is an unfathomable one. Not one of these is interested in the idea of “drug interaction problems”, they are not even interested in anything beyond their own specified area. The GP will get the reports, eventually, which will, probably, request prescriptions of different medications for each condition. He is also urging his patient to be seen by the CMHTeam once again, stating that he “knows nothing about these mental health problems”.
    Factor all of this with the fact that this particular person is also suffering protracted withdrawal from a variety of prescribed drugs. Is this REALLY the best that the medical world can do to support him?
    What we can offer is reassurance that many others suffer in a similar way and that by joining together we can ease each other’s burden. Why is it that GPs cannot see that we could be useful for them? That they could direct their patients towards such a group and help them, without using their limited appointments time nor the never-ending supplying of prescriptions for further drugs which simply escalate the problems.
    We shall continue to support but do wish that WE could be slightly better supported ourselves – after all, the doctors are meant to be there to support aren’t they? Where is the sense in talking about deprescribing and therapies in the community if the only ‘therapies’ that they will consider come in the form of tablets and liquids?

  9. “Where is the sense in talking about deprescribing and therapies in the community if the only ‘therapies’ that they will consider come in the form of tablets and liquids?”

    It’s very gone wrong indeed.

  10. The white coat to me ideally represents purity, integrity and duty of care.
    Although, I am naive to still believe this concept, I still believe that there are a number of extraordinary doctors out there.
    I have met them along my journey towards healing.
    Mind you, coming across these fine specimens is like finding a pin in the haystack.

    Sadly, the nightmares begins when no one believes your story.
    The penny dropped this year for me.
    I had a few good doctors believe in me.
    Indeed, it was very empowering/healing for me to hear those few words: We believe you!
    In the past I felt alienated from a system that did not know how to heal me, once the damage had been done.
    So the quest for trying to heal begins……………….!
    I never thought that I would have my health severely impacted by a cascade of medicines.
    I was once delusional and believed that medicines were a gift from the Gods.
    That theory went out the door as soon as I realized I had to fight for survival.
    It never occurred to me that I had to become a ‘super sleuth’ to get down to the bottom of: what/how/why I was suffering from.
    Indeed, when something profoundly impacts your life, you are looking for answers/support/understanding from the professionals in white coats.
    The authority figures we look up upon become invisible to us when they have no answers or solutions to heal.
    We are treated like some mythical creature that has come from some outlandish universe and are looked down upon as if we have no right to question what has happened to our good health.
    I got off the treadmill as soon as I comprehended that no one could help me.
    I became invisible in many of the health professionals eyes, in the sense that if I no longer submitted to the requests of tests/procedures that posed further risk to my already compromised health, I would become someone worse off than when I came in.

    Grief is a part of life.
    Everyone grieves about one thing or another.
    When grief is married with trauma it = Post Traumatic Stress Disorder.
    You don’t forget the unexpected/horrendous incident because it was an experience that leaves you traumatized for a long time to a traumatic emotional response.
    Talking about the incident usually helps.
    When one grieves it effects the whole person ~ the mind/spirit/body.
    If the grieving or trauma goes on for longer than usual or it impacts the relationships you have with others, it may be diagnosed as abnormal and this is when you have to be concerned about some health professionals who seem invisible about your concerns and emotions.
    Once you are put on a treadmill of medicines, it may end up becoming your worst nightmare.
    When you then go to experience dramatic/drastic outcomes with your medicines, who is there to really help you.
    Yes, the invisible man.

    https://www.youtube.com/watch?v=pz7XApRKtH4

    Do we need validation from those who have no comprehension of how many medicines impact good health?
    The moral of the story is quite simple. We need to find like mind people who see beyond superficiality especially, when Western Medicine sends you on a witch hunt.

    Thank you kindly to all who acknowledge/appreciate the dilemmas of those who have been detrimentally impacted by medicines. The incorrect labels are like a permanent tattoo in ones medical records.

Leave a Reply