Weight Gain on Thyroxine

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September 17, 2012 | 147 Comments

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  1. My experience has been that many patients have this experience and other negative effects on levothyroxine which is, of course, synthetic but do not have weight gain or other undesirable effects of natural hormone supplementation

    • Hi
      I was suffering the same symptoms until I seen a specialist who gave me an extra 20mg of T3 . Which gave me a new ‘life .
      amazing results !!!

      • Hi I live in Cleveland Brisbane….
        I need to see what can be done because I like the other lady watch my diet and try to walk most days, and cannot loose weight on Thyroxine….. I am on 100mg per day. So over 18 months I have gained possible 3 kg’s . Thus may not seem much to anyone else, however, being about 10 kg overweight to begin with, 3 kg’s is disastrous …

        • How have you been able to lose weight Susan? I am in Kingston. I take 100mg everyday. Weight is piling on and I haven”t energy.

    • i was diagnosed with hypothyroidism 17 years ago, I had gained 60 lbs. in about 4 months. It took over 5 years for the doctors to get my levels normal with levothyroxine and I lost the weight in 6 months after the dose was correct. That lasted about 8 years and then my dose was increased from 150mcg to 225mcg and within 6 months the weight was back after 2 years at that dose I found a new dr who put me at 175mcg. Only time will tell but I sure hope I can get this extra weight off soon, as nothing seems to work to lose weight.

  2. I should have added that desiccated thyroid or thyroid extract, refers to porcine (or mixed beef and pork) thyroid glands, dried and powdered for therapeutic use. For many there are religious and/or other dietary objections to its use. The main difference from thyroxine is that it contains
    a mixture of thyroid hormones: T4 and T3 :approximately 80% T4 and 20% T3 as opposed to throxine alone.

    • I am 32 years old I have had hyperthyoid for about 2 years now. I am on levothyroxine 25 mgs, I have been able to control my weight gain from the meds due to a change in diet, exercise and how I take my meds. I no longer take them everyday my doctor is aware of this. Instead I take them every 4-5 days exact until I see a specialist who can change my meds. I do not count the day I take it, I’m not saying this will work for everyone nor am I trying to change how people eat this was a choice I made for myself. I’m now vegan which means I do not eat meat anymore but still take in the good fats, a lot of vegetables either whole or blended not juiced and of course fruits, I also eat a lot through out the day but in little portions and snack inbetween, I cut bread and pasta out completely instead I substitute quinoa,cornmeal and potatoe,instead of rice. I also make a tea with Cinnamon , real Ginger and cumin before exercise every night. I do cardio inthe morning and strength at night. Since this my weight is stable I have not gained and have lost weight in places that was so hard to lose before. Also have a teaspoon of coconut oil every 3 days it is really good for thyroid. I hope this might help someone.

  3. Hi, I was initially diagnosed with interactive thyroid. placed on 50mg of levothyroxine. been on 50mgs for 8mnths now, blood levels have improved but my weight goes up and down like a yo yo (3-5 kilos per week fluctuation) feel a little less tired but not much. do I need to increase my dose? Never felt much benefit even though my bloods did improve. no side effects so far though.

  4. I thought it was my imagination, I have been on Thyroxine for about 8 weeks now and if feels as if I pick up weight on a weekly basis. I am confused by my results, I was really tired, weight gain ect but my levels were high?

  5. Yeah, you’ll gain weight taking thyroxine if you don’t have hypothyroidism. Thyroxine is for hypothyroidism. Is is not for people who don’t have hypothyroidism and are taking it just to boost their weight loss. When you take thyroxine when your thyroid is perfectly normal, then you just screw up the balance of your system & your thyroid compensat
    es. Make sense?

    • Jean – people with clear hypothyroidism at least on laboratory testing can gain weight when they take Thyroxine

      • I have been thyroxine-75mgs for about 15years and I have not been aware of any weight gain. I have not lost any either. I am however, quite active and busy. I do as much maintenance around the garden as I can manage saw wood by hand and other DIY jobs that arise. I used to walk a lot but now still manage a mile and a half with the dogs. I also go up and down the stairs many times a day. My blood pressure is also good. I try to avoid too much sugar but I still enjoy sweet foods.
        I am 71 years old.
        I wonder how much even modest activity will combat any potential increase in weight?

        • I have been on levothyroxine for 9 years now and have been gaining weight ever since I started taking this. I usually walk 2.5 miles per day at least 5 times a week , try to watch my diet and stay active. I still gain weight no matter what I do. I never had this problem before the medication.

          • Thankfully i thought it was just me that this happens to, it’s making me very very low because no matter what i do i cannot lose any weight, but will inevitably die if i stop taking this levo. Stuck between a rock and a hard place.

          • Thank you so much for everyone taking the time to make these comments. Doctors simply want to keep patients on eutrosig for some reason and I definately felt better without it. I gained 7 kilos in about 2 months and nothing else had changed other than starting thyroxine. It made no sense as the other thing that it did was cure chronic constipation, so why was I gaining?! AND it was a very puffy wobbly type of weight that i have never had before. At least i know that if others like yourself are experiencing this i am not imagining things . I want to stop the thyroxine and see if i feel better. I have gone up 2 bra sizes and feel like hormonal mess.

          • You sound exactly like me. Curious if you ended up stopping the levothyroxine? Did you lose the weight? If so, how long did it take?

          • I have been on Euthyrox for 7 months now (due to all clinical signs of hypothyroidism and border line hormons levels). My family history is positive for hypothyroidism on both maternal and paternal side. Now I am taking 25 or 50 mg daily. I have always had weight problems, but for this 7 months during Euthyrox therapy I gained 1kg each month without any eating habit changed. 7 kg all together. My other symptoms are improving, but weight is something that I cannot control at all. Being a doctor I am hardly to believe what I am experiencing now.

          • Thank you for your honesty. As a doctor this probably puts you in an awkward position, but people like me appreciate that you can have an open mind to the vagaries of hormonal fluctuations in different people. You must feel frustrated as well!

          • I have had hyperthyroidism for yrs and have had such a hard time gaining weight.. last yr I had a total thyroidectomy due to cancer, wow I started gaining weight And was so happy. Then about 6 months ago I had to have a total hysterectomy and within 2 months I have lots almost 50lb.. I was taking 150 of sythroid before the last surgery. I now take just half because I had my blood checked and it was 0.0001… I just want to Gain my weight back. Should I stop the thyroid med or reduce it even more. All the threads talk about ppl wanting to loose weight, I need to gain!
            Not to mention all the other symptoms…. I would be here all day.. Any advise?

        • Barry, it may be more of a female based problem. I joined a gym and exercise 10 hours a week more than i did before the thyroxine. It is very frustrating to try to explain weight gain to people when i eat less than they do, exercise more, and still people dont believe that the weight goes on by itself. I will never take my health for granted again. I see other women who look uncomfortably bloated as i do and i feel so sad that they probably have people who are judging them and telling them to be more active when nothing works . the body has a mind of its own it seems!

        • Well good for you. That helps nobody that has issues they do not want. The garden won’t help them. Not helpful

      • Hi
        I am 47yrs old and this week have been put on 100 cmg thyroxine. My thyroid antibody count was 1450 (should be less than 67) and my TFT came in at 7.86 so put on meds. My biggest concern is weight gain. I had test done because I have vitiligo; the condition is genetic; my memory is terrible and suffer extreme exhaustion for no apparent reason. I also noticed that I put on 4.5 kg in a month (before going on meds) even though I have been same weight (other than when pregnant) for 25yrs and have not changed my diet / drinking habits or exercise routine.
        Doctor said going in the meds would change my life but 2 days in and I have gained another couple of kilos and tummy looks like I’m 6mth pregnant. Not happy! Please help! Do I stay on or go off?

        • Hi Angela I can’t believe my. Daughter is on thyroxine she looks six months pregnant I can’t believe you just said that she used to be hyper very thin could eat anything now she’s hypo but her tummy looks six months pregnant it’s so depressing for her her partner has left her she’s now a single mum she gets chronic fatigue depression sweating overheating and anxiety her friends think she’s just fat and lazy but it’s hormonal now she’s a single mum and has to work harder with these symptoms from what I’m reading here I think it is the thyroxine thankyou so much for sharing guys it’s so good to know we are not alone it’s the mystery chronic illness it makes you look at fat people differently they may not be home eating copious amounts of good but have a thyroid hormonal problem

    • I’ve been on levothyroxine now for just about 6yrs. I can confirm that when I don’t make the time to get my refill of forget to take it, I tend to notice that I feel less bloated and feel the weight lose. I usually have to be off of it for like a week begore I start feeling the weight lose. The moment I start retaking it, in a week I feel the weight gain. It is very consistant when I’m off and on. So it’s true, this medication makes you gain weight for sure. Only problem, is if you stop taking it you become very tired and weak. It’s almost like a sich tired.

      • Cheryl, me too! I have no thyroid, I have to be on something.

        It doesn’t matter whether I’m on the thyroxine, or the Natural Dessicated Thyroid, I’m still fat, bloated, balding, splitting fingernails, fatigued, etc.

        I thought it was from complications with other drugs (psych: lithium, SNRI, which I am now totally off), and that my metabolism had been shot.

        I didn’t even consider the thyroxine!

        • I had a thyroidectomy in 2001 due to thyroid cancer. So I have no thyroid too! I have been on 200mg of thyroxine for those 15 years. Recently the doctor reduced my dose to 150mg and I seem to suddenly be putting on weight now, but bizarrely have more energy. Think a healthy diet is the only way to balance things – I wish there was a natural alternative but until then I am entirely dependent on my daily thyroxine. I will vote for a government that will keep our NHS system intact, so that I can keep getting my medication for free…

      • I had RAI back in October 2015 to stop Graves’ disease from attacking my thyroid. It took until last month to get meds waiting for my thyroid to die. I had severe Graves almost dying. I have gained wait easily always but since the RAI i gained 30. Now that I am on Levothyroxin I am gaining wait fast. I have been on a very strict diet since starting levo…zero sugar, 20 grams or less carbs per day, high protein, 800 calories at most per day. It makes no scientific sense that j am not losing weight. I would love for these endocrinologists to put is under 24/7 suvelience to prove those of us desperately and strictly trying to .lose weight are NOT losing weight. They just brush us off and assume we are cheating on our diets. Meanwhile joint pain, teeth pain, exhaustion, and feeling sad and discouraged sets in. I have been clinically depressed and this is not that. I have a desire to win and succeed..to fight even as I am exhausted. This is sadness and frustration over our new reality…I would like to see these endocrinologists live this nightmare. They blame depression, aging(20/30/40/50/60/70(they conveniently pick your age whatever it is and say it could be that) diet(condescending look as if you sneak eat), exercise which is hard but we manage but they don’t think so. Diet is 85% of weight loss exercise is 15%. This makes NO sense how I am not losing weight and am gaining weight or this fat is hanging onto me for dear life. Why aren’t they listening??? This fat and bloating CANNOT be healthy! Sorry for the rant, I am just so frustrated, angry, sad, and tired of this nightmare,

        • I thought I was going crazy. Thank you for your comments. I am super heat sensitive, so so tired, ache and getting fat on Levothyroxine. I have blood work 2x a year and see docs 2X a year to watch some nodules.
          They discount my complaints and try to blame menopause. I must take these .75 pills or risk nodule enlargement. I have also begun a food diary and exercise diary to shove in front of my doc on the next appointment. I am also getting some “low” moods and losing motivation.
          Thank you again.

        • I’m so glad i found this site …I’ve been pleading with my doctors for years about the weight gain.. they brush me off and refer me to the dietician. .. it’s getting so bad I’ve been put on Prozac and Trazadone for depression and sleep disorder.. most recently sent for a sleep study and put on an apnea machine. .. I’ve literally gain 85 pounds and never exceed 2000 calories. . I’m on the go 15 hours 6 days a week… then house cleaning on Sundays. .. I’m not sitting around eating bonbons waiting for room service to bring up clean sheets… bit yet the weight continues to find me.. it’s nice to finally have an idea of where to start with my next argument with my doctors

          • I was put on Levothyroxine and immediately gained 6 pounds. I stopped taking it because I had gained a signifigant amount of weight through the years even doing regular execise and eating right , I sure from my underactive thyroid, but dr. never did test for t3, t4 said it was normal. So I did some research and lots of people have had luck with Armour. I ask her to put me on it and tomorrow will be my first day. Keeping my fingers crossed that it works.

          • Hi Melissa, I’m glad I saw your post! I thought I was the only one who put on a lot of weight.. I can’t shift it no matter what I do and I follow a strict diet and do exercise. Makes no difference. absolutely over it..

          • Melissa 2000 calories is a lot for a woman. For example a woman 5 foot 4 inches weighing 130 lbs only requires 1400 calories to maintain weight. Youre eating way too much!

        • discovered I had a goutrer + graves about 10 years ago had the worst time hair falling out dry skin emotional break down off work 4 about 6 months still do not understand desease on 150 ml a day but don’t feell it’s enough if they reduce to 125 get really emotional and go into deep depresion + gain weight then they up again +I feel better but not right? ! .

        • Omgod it’s awful I’m so sorry to hear this my daughter has it to no one understands it it’s so depressing she looks six months pregnant she was always thin she’s so depressed with the chronic fatigue and no heat control

          • Wow ive been on high levles of thyroxeine since i had my first child 17 years ago, at first it went over active then shifted to under active and ive been on thyroxeine ever since from 175 to 225 im now on 200 and I put weight on continually, I was over 20 stone a month ago and i hardly eat! People around me dont understand, i eat small portions and im full, my doctor suggested a gastric band, but like ive said to my family i dont enough for that, so how is it going to help. People look at you and think she eats all day long, and its so annoying, i wish i did!!!!! My stomach is bigger than when i was 9 months pregnant 3 times. Im just beside myself, im on diet pills, but its hard as i need to eat fat for them to work and i dont always. Im really getting distressed about it now. Nobody understands either

          • I hear you. People look at my size and assume I eat a lot, but I don’t. Since being on thyroxine, 200mg I have kept ballooning and my doctor is convinced it’s not from the thyroxine. I’ve just changed drs to a guy in wynnum, and he is the first Dr that has agreed that a portion of the weight gain is thyroxine. The problem is that if I do not take it, I am sluggish, have brain fog, and a husky voice. It’s a choice of having energy, or wanting to sleep all the time

    • I’m trying to understand how a perscritption would be written by a doctor for the patient just to loose weight. That doesn’t make sense. The blood levels should indicate the need for medication.

        • Hi Amanda, I’ve been on Levothyroxine for around 2 to 3 years now and I have gained 3 stones in weight. Everytime I go to my GPS for help and explain that I’ve only been gaining weight since taking Thyroxine, they say no it’s not the medication it’s in your head. I’ve resulted in not eating at all because it’s getting me down so much. I only have to look at food and I put weight on and I’m very careful in what I eat. So I understand 100% what your feeling and going through.

    • How did things turn out for you? I am new to this and hoping to learn from everyone’s wisdom and experience.

      • I have been taking this for 6 weeks for underactive thyroid – worst thing I have ever done. It hastaken nearly 2 years to get my weight down from 12 1/2 stone to recently in May this year weighing around 10:5 and admittedly I do put on a couple of pounds and it does come off again over a week. Since taking levothyroxine 25 which is supposed to be the lower dosage my weight since I have been noting it daily is going up by a 1 Ilb everyday and now I am nearly at 11 stone over such a short time. Now suffering with continual bloating every am I wake up as if I have over eaten the night before it’s a nightmare. I still exercise using my push bike for work and some lunch time running and it has no effect still increases. After researching all over the internet I have yet to find any women who have actually not gained weight and have any postive feedback from taking this drug. I asked my chemist and he said that it is probably the wrong dosage and may need to increase. I have recently had blood test and will get results Monday but I will contact GP as I am going to come off it. Why take something that is causing you more symptoms and why are the NHS not realising that obviously this is a cheap product that is not doing anyone any good in fact causing worst symptoms in some case that people have not had before. The reason I do not want to take a higher dose is because I don’t think this is the answer as people are all stating different dosages and still weight gaining/

          • Mine dosage was increased because I didn’t get better and kept gaining, then I stayed constipated, so I cut my pills in half now, I go to the bathroom great, everyday with no problems, quit gaining, but haven’t lost either

        • Hi Jane
          I’ve just started taking this for under-active thyroid. Have piled on 6 lbs in as many days, and have never had a weight problem in my life. Going back to the GP next week in hope I can have one of the alternative options … (but not particularly hopeful).
          Seeing your post is nearly a year old – I was wondering how you got on, and whether your meds were changed and were you able to get the weight back off again?
          With thanks.

    • Yes…I have known for 50 years that anything synthetic destroys the immune system by overriding the natural.
      The gentleman that told me that is one of the World’s leading researchers.
      many years ago he said to me…’Peter you would not believe the insane amounts of money I have been offered to write a false report about a product’….that may help some people understand why there is so much contradiction about ingredients etc.

      Happy to share what I have found as a result of searching for answers after the loss of my 72 y.o. Father in 1985 with a massive brain tumor.

      Sincerely,

      Peter.

  6. I am also on thyroxine and have been gaining weight, and despite regular exercise. As I have has my thyroid removed, I am concerned if I can to control this increase. I am not fan of diets as I think this leads to further problems.

  7. I’ve been on synthroid for over 12 years after thyroid cancer. For about 6 months now I have been overwhelmingly fatigued, miserable and gaining weight out of control. Classic hypo symptoms right? No, apparently I am hyper (beyond tsh suppression) and doctor has lowered my dose. So, can anyone explain why I would gain weight while hyperthyroid?

    • Hi Joan, I am also on TSH suppression for stage 4 pap thyroid cancer. I now am 3yrs post TT & RAI. I have the same issue with weight gain, while technically being hyper, 5kg is what i have put on since TT and i can’t budge even half a kg. I am taking 150mcg x 4 days and 125 x 3 days. I was on 150mcg daily after TT, but i was getting too many heart palps and sleeping all night is still an isssue. My endo explained that when our bodies are forced into a hyper state we can get some symptoms, but weight loss is not one of them. As i am 57yrs and post menopausal, that doesn’t help the middle age spread. I eat a healthy diet and walk regularly. I have so many other problems since TT & RAI e.g. dry mouth, dry lips and eyes, not able to talk for long as my cancer had spread to the nerve in my throat and lymph nodes. I wish i could get a good nights sleep, but i think without a thyroid, even though we are on meds, life never is the same again.If you find the answer to the weight gain, let me know.
      Lyn

    • Hi yes I can explain. When you take T4 it depends how much of it converts in the liver to the active T3 thyroid hormone. If you cannot convert it properly it sits in the blood and does not enter the cells hence you get a drop in the metabolism. Your doctor will say you are taking too much but that is not so as what is happening it is building up in the blood and going nowhere but the blood test will show too much t4.

      Natural dessicated thyroid hormone contains all 5 atoms and so there is always T3 that can enter the receptor sites on the cells. The TSH test does not work properly that is a fact and the FT4 and the FT3 are still only showing what is in the blood not what is entering the cells. Only the basal metabolic rate will show this and symptoms. You could ask your doctor to change to natural thyroid hormone or add some T3 Hope this helps.

      • I started to get back on T4 for 3 months. I was still exhausted. I asked to take T3 also I am getting FAT from both. From a American 2,4 up to a 6,8 in 2.5 months. Nothing different in my diet. I’m hungry all the time. Still fed exhausted. I eat very whole, and healthy. Nothing processed. What is happening. 5 years post-menopausal no weight gain, but weight loss. Now these meds. Is this worth it? Seems people are complaining of the same thing with natural thyroid as well.

        • I am the same. I NEVER cheat on my diet. I am like a robot. I don’t eat out, I don’t eat processed food…this in itself is not fun and feels very unfair…quality of life is being taken from me on so many levels. I am all protein now which always dropped my weight dramatically. People older than myself drop the weight super fast on the life diet. I had my hopes up for synthroid and armor etc but have also heard so many saying it doesn’t help. What are we supposed to do? Dying of a heart attack from all if the cumulative fat isn’t healthy. I feel we have been medically abandoned….left to suffer.

          • Sherrylynnp,
            I agree I’m getting fatter and fatter and I’m short it is very depressing when I exercise and eat right. Why can’t they help us.

  8. Hi Lyn, I’ve been on thyroxine for 33yrs now and my weight seems to be getting harder to control I’m about 10/15kgs overweight. I went on a very strict eating plan two years ago and lost 18kgs in 12 weeks, so it can be done but too hard to maintain. I sometimes increase my levels of thyroxine but find nothing much changes, except the weight gain and I think my heart rate goes up? which I thought my metabolism would increase therefore weight loss ….but no!!! I find it hard to believe as when your body produces too much thyroxine and your hyper you loose weight so I’m baffled to understand why we increase our weight on increased thyroxine?? I’m 57 and also menopausal which adds to the recipe. I’m under a doctor at the moment as I’ve had symptoms of weight increase, tiredness, coughing, and I’m puffed out just walking up my stairs….but I’m sure she’ll just mmmmeh!! Me when I mention if it could be the thyroxine doing this??? I really hate looking in the mirror to see how I look and find it hard to understand especially when I’m not a bad food eater??? Don’t know what the answer is???? If anyone can suggest something I’m open to anything constructive…

    • Same boat as you Elsa. I have been on synthroid/levothyroid for 30 yrs. Only once did i lose weight. when i was perimenopausal, i went
      down to a size 4.. I couldn’t figure out what i had done to allow this but it was nice. Other than that time, weight has been a struggle.
      2010, i really worked at losing weight. less calories and exercise. lost 20 lbs. Then its almost like my body reacted to the weight loss by putting me in a hypothyroid state. (My pcp said i needed to do more
      sit ups and put polish on my chipping nails.) the Dr. i have now looks at me like i need help and am too stupid to figure out how to lose weight…..very frustrating. So, now i’m 50lbs over weight and on .75 mg levo. I can’t find a dr. w/o spending lots of cash who will consider other options in thyroid treatment. Recently, i became dehydrated, and have more issues related to obesity. Sadly, searching these sites i find little in suggestions.

      • Hi tris ive been on thyroxine for my underactive thyroid for about 6 years. 4 years ago i had a hysterectomy and lost 10 kilos. Gradually the weight has crept back. Im so tired all the time no energy my skin is alway dry and itchy and i feel like crap. I get sick of people saying why are you so tired you are falling apart ? then when i say i have an underactive thyroid they just say whats the big deal that’s no too bad ? i wouldnt wish this on anyone

  9. A year ago I was diagnosed with Hashimoto’s disease and have been on Thyroxine for the past year. I have noticed weight gain and thinning hair, the latter an issue I’ve never had before. Perhaps its the quality of the medicines that are the problem. Is there a way to test one’s medicine to ensure it contains what it is supposed to contain?

  10. Try looking into armour thyroid or other dedicated natural thyroid replacement , also website ‘stop the thyroid madness ‘

  11. Iv had total thyroid removed due to cancer 22yrs old also and I find when my levels are increased I get adverse effects I feel cold drained and bloaty

  12. When I finally got my “hypothyroid” diagnoses I was so happy because I thought I found the cure for my tiredness and weight gain but sad to say, I now have more muscle aches and pains than ever and my weight has been growing weekly. When I ask my doctor if it is due to levothyroxine I am taking she tells me it is not and that I eat to much and need to work out more. I DO work out 4 days a week killing myself trying to lose weight and end up so sore and out breath, I follow low carb diet plan with no results. Anybody have any natural remedies that have worked????

    • I am just like you, I can eat dried fruit, salad and bloat up like I ate a HUGE bowl of pasta….hmmm I don’t have any idea what to do either, my doctor told me to cut the carbs and fat, well, I have and still gain weight, I swear I get bigger each month,…..and not as tired and achy I used to be but I still am if that makes sense, I still have my thyroid, it was low, I feel as though I want to try going off of the medicine to see if my weight goes down…

      • I’m going to come off it when I speak with my GP today will post back what they say. I’ve been on a low dosage (25) for 6 weeks and my weight is increasing everyday for someone who regular uses push bike for work and some running and swimming it’s become depressing. I am already having to have B12 injections 3 monthly for the rest of my life due to excessive fatigue and now this under active thyroid is just the last straw giving me further complications and weight gain is a no no for me. It’s strange as my father also has under active thryroid and is on dosage (50) and he is coming up for 80 very fit exercises regularly and had put on a few pounds but nothing significantly. Only seems to have the brittle nails problem but that may come with age. So this really does seem to be a problem in women taking this drug more than men.

  13. Hi. i had a total thyroidectomy in 2003 due to cysts. Since being on Levo my weight goes up each year. Im on 200mcg a day now. My hair got so thin when I make a ponytail it is as thick as a pen. I cycle 30 minutes a day in the mornings and I am eating low carb and watch my kilojoule intake.
    My lab levels are high. I did not want to cut down on Levo because I was scared I will majorly gain weight. Before the op I was thin. Now from tomorrow I am going to do an experiment, I am going to cut down to 100mcg for a month and see what happens. I read somewhere that hyper symptoms can mimic hypo symptoms.

  14. I think it is the BRAND of Thyroxine. I had thyroid cancer, had a total thyroidectomy and went on a brand of Thyroxine. My wonderful doctor allowed me to experiment for almost a year to get my exact dose, I felt great, rapidly lost 50lbs and looked 10 years younger. Two years later I had a double whammy, Forrest Pharmaceuticals had their patent expire for that drug (patents are not for ever) and my doctor retired! That was Christmas time. My drug was changed, by April I had put on 60lbs and my new doctor told me the new Thyroxine had nothing to do with it. She begrudgingly let me change brand once but kept my dose down to the standard 125 instead of the non-standard 130 mg/mL my old doctor and I had worked out. There are other brands but she says, “There you are, you changed brands and it made no difference”. Well, true that one didn’t anyway. I am so depressed, if your doctor will not cooperate, what can you do? Keep changing doctors until you get a good one again? I could be 300 lbs by then. Not all of the answers are in on Thyroxine, this weight gain problem is real, doesn’t anyone want to do the research and find out what is actually going on?

    • Thank-you for saying this!! i’m at wits end with the recent weight gain from levothyrxine.
      i have been treated for 35 yrs. it seems every 7 yrs. or so my dose is lowered.
      Fine but this time!!!…i have gained 30 lbs. on levothyroid.
      same thing DR. ignores U and says see a nutritionist to learn what to eat….take an anti depressant for moods. ..Yikes so ignorant to ignore our symptoms. and why why why!!
      can’t some one address this …i thought i went to an endo that was understanding …same thing. told me all a coincidence…i’m eating more.
      Now to find a doc to prescript Amour…pay more …wait for results.

      • I am 71 and have been on thyroxine since my mid-40s. I had a lovely figure back then and weighed around 11 stones. Since then I have steadily gained weight and am now 14 and a half stones! Always tired and so miserable at times, feeling so fat and heavy. Never looking really good whatever I wear. I have only just seen all the comments on thyroxine/weight gain. I am so shocked by the possibility of thyroxine causing all my problems! I am so afraid of my weight causing heart problems or a stroke. About three years ago my doc reduced my dose from 150 to 125 leaving me so tired and just 2 weeks ago he reduced it again to 100. Even more tired
        And collapsed two days ago in a faint. Luckily I was with family and was safe but am really afraid of what is happening to me.

        • I know exactly how I feel. Please tell me how you are now. I hope Al is well. We need to stick together through this. No one seems to understand. So crushing and frustrating.

    • The same thing happen to me I have this new doctor who cut my Thyroxine from 150 to 100 …my weight gone up hair falling in clumps crawling up and down stairs cannot take a walk my body is crumbling. Now I am looking for a real doctor who will help me not say you 56 yrs so it is your age. I being taking 150 for the last 17 years as my thyroid was taken out . My memory is failing most time I even forget where I live , now my hubby does all the shopping even buying me pretty knickers. I want to live .

    • YES!!! You change DRs. I go in and tell them they work for ME. I know my body. I expect them to do what I want unless it would be detrimental to my wellbeing. I have not had one deny me yet. That doctor you have is a jerk for saying that and rubbing it in your face. You want a compassionate open minded Dr. Find a younger 40ish dr. They are more open to new things. It’s your body and you live with the consequences not them. Keep trying.

  15. I’ve had a partial thyroidectomy and goitre removal after being diagnosed with hyperthyroidism, after some months when things settled I then was tested and am within the ‘normal range’ apparently. I was also diagnosed with CFS.That is very hard to manage, regular b12 injections and trying to pace. However it was suggested by the endo specialist that I go onto a very small dose of thyroxine as he has some patients that have reported feeling marginally better with a dose, I am now about 10 weeks in and I’ve definitely noticed weight gain and a small dose as well! I thought I was imagining it but this thread Confirms my thoughts. Is there a natural alternative I can Use? Weight increase doesn’t help, I’m feeling so low as it is.

  16. i have had a complete removals of my thyroid due t cancer 12 years ago . I too have gained lots of weight , aches and pains . My vocal chord was also damaged when I had the removal so this effects my excersising as I get out of breath sometimes just talking let alone walking up the stairs . Does anyone have any ideas on what I can do I take 200 mg a day

    • Hi I had all my thyroids taken out on the 13th Jan 2016 as I had cancer , I’m on levothyroxine and I feel so bloated and feel like I’m gaining weight . Where my trousers were loose now they are tight ? I am on 150mg a day , I don’t understand the levels to be honest I thought taken a higher dose I would lose weight but that’s not happening . Do u know if u are on a much lower dose u would lose weight . I have my first blood test next week to see if my levels are ok and whether they will up my dose or lower . Been reading loads of comments on here and everyone is saying how much weight they have gained it’s frightening me as I just don’t want to get huge and not be able to control this . I’m not sure how long ago u wrote your thread but wondered whether u was still on a high dose or if it’s been reduced and u have lost any weight . Thanks Theresa

      • I am in the same boat as yourself Theresa ….. I had thyroid cancer in 2012 and had my thyroid removed in two separate operations later that year after the first op proved cancerous. I went through 18 months of treatment and being locked away on two separate occasions in 2013 for radioactive iodine treatment. Up until recently I have managed to stay roughly the same weight on Levothyroxine so have been lucky and have fluctuated from 125 to 150mg. I have still felt bloated and suffer with aches and pains whereas I never used to post Levothyroxine though. I also am not sure if the more mg you take per day speeds up the metabolism or slows it down but I am currently taking 150mg and have been for the past 3 months after previously taking 125mg. Ironically, 3 month ago I also started taking HRT and since this time, my weight has increased and not sure if it’s the combination of both drugs together as reading up on the HRT side effect, it doesn’t seem to indicate weight gain. Getting the results of my routine blood test tomorrow at my doctors appointment so will mention this and see what my doctors response is.

  17. I had a complete Thyroidectomy 6weeks ago and im now taking 750mcg over a week. After reading all these blogs I am terrified of the significant weight gain? I am just worried because I had gained sone extra weight before surgery and if this is going to make it worse it can’t be good? I can’t stop taking it and I’m not sure what else I can do?

    • Dayna

      You are highly likely to be fine. But if there is weight gain and they say to you it could not be from the thyroid hormone they give you – show them this blog. A change to a different preparation may solve the problem

      DH

    • Hi dayna. Read your thread which was back in April 2015 ? How are u now I been on levothyroxine since 13th Jan 2016 and I feel bloated to hell and have gained 2lb. I’m scared it’s going to spiral out of control I am on 150mg a day I thought being on a high does I would lose weight but it’s not doing that . Have u had any help and has your weight stayed high or have u lost anything . Would appreciate your input and experience . Regards Theresa

      • Please note that we are all taking using doses of levothyroxine in: micrograms = mcg and NOT mg – milligrams
        Just wondered if anyone has used Glaxo Leothyroxine and switched to Euthyrox Levothyroxine

  18. I was diagnosed last year with under active thyroid plus rheumatoid arthritis. The symptoms for both these are similar but the treatments very different.
    My problem is that they have now increased my Levothyroxine to 125 because I was still very tired and sleeping 12 – 13 hours nightly and I have since started to gain weight. I have always been lucky 0 could eat anything and stayed around 9 stone which at 5’7 is slim. What do I do? Any suggestions?

  19. I have gained so much weight lately I am on 175 of levothyroxine i swim 50 lengths of a 25 meter pool 4 days a week followed by an hours exercise class 4 days a week.
    I eat a very healthy low fat low carb diet which if I was normal would make me really thin.
    I am going to try not taking my meds for a week and see what happens. I have been on them for 15 years now. I have never thought it was the meds that might be making me fat. I am also going to ask my dr to change me on to the natural thyroid hormone and get some T3. I have herd that if you take T3 along side the thyroid meds it can really help with weight loss it’s just getting the Dr to agree to letting you have some. I will update my post with my results as I go along.

    • I am the same as you.Sick of my doctor making jokes about my weight gain,it’s frustrating.I am not a saint I will have the occasional treat so as to feel that I fit in with the human population,but I am by no means a big eater.I have gone off Zoloft thinking it was causing weight gain,horrific withdrawal symptoms but over it now.Next will be quitting thyroxine and monitoring my symptoms.Good luck and my utmost admiration to all you wonderful people endeavouring to conquer shitty side efffects

      • Hi Vanessa, I read your response, and you wrote on here in 2015, well, I’ll give it a shot and see if you get this, I am on Levothyroxin and Zoloft as well, my weight sky rocketed in a year! like 60 lbs, so how was your getting off the meds? did it do the trick? Just curious, I just decided to stop the Levothyroxin, ( scared to ween myself of the Zoloft)
        let me know! I’m excited to hear!

      • 3 years ago I had gone off cigs an gained about a stone in weight so I went back 2 slimming club hat had worked for me in the past but even though I followed the plan with no cheating I was gaining 1/2POUND a week so got my bloods checkedmond an was told I had underactive thyroid was put on medication 50g first an then increased to 100g .was told by doc it would take a few months to regulate but when it stabilised I would lose the weight .my bloods have all come back perfect the last 2 years but the weight will not move .the only thing that worked was the lipotrim which was 3 shakes a day an nothing else but even then it was a slow compared to others I’m actually going 2 stop taking medication and c what happens

  20. Gaining weight with levothyroxine. Am on 5.2. Diet. I had stopped meds & after bloods doc increased dosage – while i wasn’t taking thyroxine was losing the weight. Within 12days of being back on he meds i put on 6lbs.What to do ? Am disabled so cannot exercise….

  21. Hi..Was put on levothyroxine 25mcg tab. Daily 4 months ago for low thyroid. Have gained 20 freaking Pds. Stomach looks like I am pregnant. Yesterday new blood work shows I now have a slightly elevated thyroid. It seems like I should be able to stop Lev. now. Anyone know if I can stop cold. Weekend so cannot ask Dr. Any help is appreciated. Thanks

  22. I’ve just read through what everybody has had to say with regards to their journey, and I can just relate to it all. I thought I was going mad, I thought I was becoming a fat chubby chick, through what I was eating, but just couldn’t understand how, yes like some of you, I am no saint I just want to feel human so do have the odd treat, but why not. I swim a mile three to four times a week and walk my dogs, I have a very active job, and I am most certainly not lazy, but the weight just keeps on piling on. I don’t have a very understanding doctor, he just says its hand to mouth syndrome, it’s all about what I eat, when I knew that it wasn’t. I so want to go back to my doctors and complain and change my medication, at the moment I’m on levothyroxine – 125mcg, I’m confused at the moment as to what my alternatives are, pls could somebody advise

    • Print out the post and comments – and point out the original post is by a doctor whom your doctor can contact if need be.

      DH

  23. At age 76 I was told I was hypothyroid and doc put me on 50 mg Lethothyroxin per day. I was shocked because I had no symptoms except what the blood work apparently showed. I have felt so good, but after two years I have gained weight and my flat tummy now bulges like I’m pregnant. I had no symptoms of feeling tired etc etc ever and still don’t but I have taken myself off the meds to see if continued exercise will get rid of this weight.

    • It’s actually normal for people’s TSH to elevate as they get older, many doctors won’t treat this, especially if it’s sub clinical – TSH < 10.

  24. I was recently diagnosed with a prolactinoma, which was causing extremely high prolactin and low testosterone. The blood tests also revealed under active thyroid, so my doc put me on levothyroxine. I’ve been on it a month now, and have not lost any weight at all. In fact, I started out at 212 lbs, and I have gained 2-3 lbs, so now my new “normal” is 214-215. I also look and feel bloated in my belly area and my clothes don’t fit too well. It’s not just my observation either. My wife and kids notice a change too.

    This is all despite the fact that I do heavy weight lifting 3x/week and have not changed my diet at all. In fact, I am not a big eater.

    I recently had a blood test to check all of my hormone levels, and thyroid is now “normal”. I asked my doctor about why I am gaining, and he just said to stay on the same dose and doesn’t offer much beyond that.

    I was honestly feeling better before taking levo and now I am seriously considering going off it. I think the truth is that doctors don’t really know how the various formulations of thyroid supplements work, and that we are basically at the mercy of the pharmaceutical companies that make these drugs.

  25. I was just diagnosed with hashimoto and started on .25 mug bumped a month later to .50 mug and I feel HUGE!! I’m miserable! Bloated, I look 4 months pregnant, by 3 pm everyday I am just drained and the weight just keeps coming!! I went to the doctor to begin with because I could not lose weight no matter what I did ( which was very odd for me because I have never really had an issue with weight) , among other symptoms so I knew something was wrong. However, being on the medicine is not making anything better. Has anyone found a way to drop the weight???
    I will stop the medicine before I gain anymore weight.

  26. Ive been taking levo since 2000 for Hoshimotos,125mgs, always struggled with weight, but its only in the last 2years changing to Vegan /fruit Diet that changed my life. I’ve had 5 blood tests in the last 2 years and my level has reduced now to 50-75 mgs. I tested the diet by introducing some old foods and notice I needed an up of levo. back to the diet and its down again, so somethings worked for me. I do believe Levo meds help sometimes but were all individuals and our bodies will tell us when its not happy.I wish medics would take notice of us

  27. I was diagnosed with hypothyroidism a year ago. I’ve noticed in the past couple of months I’ve gain 17lbs. I am now 217lbs. I’m afraid I’m gonna end up extremely heavy. I can feel the weight now. I suggest also with no motivation, tiredness, weak, body aches and pains more now than ever. Im so tired of feeling like this. I miss the energy and feeling good. It’s taking a toll on me as well as my family. My husband thinks I’m just lazy and I use my thyroid as an excuse. I’ve talk to him and show him print outs and he just doesn’t believe me. It’s like he doesn’t want to understand or he does and it doesn’t make a difference….I’m noticing my cloths are not fitting right any more. I don’t want to get bigger sizes cause then I will know when I gain more it’s gonna mean I got fatter…I’m so sick of this….someone some where has got to come up with something.

    • Hiya.
      I really felt for you because the same thing happened to me when I was first diagnosed.
      I went to the clinic for tests, and prescribed Levothyroxine, that was back in 2000.
      never been to the clinic again, but have regular bloodtests, I used to weigh at my heaviest 14 stone, and 5ft 2 is not good. I never told anyone as I felt so embarrassed.
      this went on for years until I came across raw till 4 on utube.
      It changed my life and outlook to weight, healthy eating and exercise.
      I can still remember not being able to get up off the floor without having to pull myself up, I still have dreams its happening.
      there is always hope, and your husband should be supporting you , though its hard for partners to fully sympathise.
      please dont give up, it takes dedication to go back to the docs and say how ill your feeling, they shouldn’t pass you off either. I alter my dosage slightly as my body soon lets me know when things are slowing down. I’m here if you need support x

    • My situation is the same Lisa, what have you tried? Anything helping? I’ve gained 12 lbs in 2 months. I’m scared.

  28. I was diagnosed with Hashimoto’s 29 years ago and have struggled with my weight ever since. I’m now 65 and exercise regularly but just before Christmas had crept up to a horrific 244lbs. I found Sarah Wilson’s Simplicious book at the start of January and decided to give it a go. Basically you are cutting out processed foods with lots of hidden sugar, high fructose fruits (fructose is processed by the liver and mostly stored as fat) and sucrose (refined sugar – one glucose and one fructose molecule join together to make sucrose). I have adapted my usual cake recipes by substituting half xylitol and half stevia granules and the family love the results. Otherwise eating normally. So far I’ve lost 11lbs in 7 weeks and have more energy and am sleeping better. My thyroxine has been at 175mcg for years but now it might need to be reduced as my mood is just beginning to be irritable, I’m easily startled and I feel a bit too hot when I wake up in the morning. I’ll let you know how I’m getting on in say another month.

  29. I was diagnosed with having an underactive thyroid about 4 years ago and my GP (general practitioner) put me on levothyroxine. I felt fine at the time, and was very active at work (I work at an airport) She told me I might even lose a little weight, but I was a UK size 10 so I wasn’t too bothered about it.
    I had a blood test every few months & went in to see my doctor to get my results and to see if I needed to increase the dosage…..the last time I went, I was on 150mg. But I had started to notice that certain trousers (pants for Americans) were getting a little tighter, and so I bought the next size up. And also my breasts were getting bigger, which you might think is a good thing, but not when the belly, the butt, the thighs, the arms, even my calves were all…..expanding. Then someone asked me when my baby was due!!!!!!!!!!
    As I said at the beginning I felt fine before starting the pills. Since being on them I started to feel drained of energy, weaker & get tired more easily physically, stairs are not good! But I also started not be able to sleep for a few days. Sometimes I was tired but just wasn’t able to sleep, while other times I just didn’t feel tired. Not good having to get up at 3am for a 12 hour shift & not getting back until around 6pm if the traffic wasn’t too bad.
    So, I made the decision to STOP taking my pills!! It’s only been a few months, but I sleep every night & don’t feel so tired walking around at work. I even have the energy to go running again. I’m not sure if I’ve lost any weight, to be honest I don’t want the scales giving me nightmares ha ha, but if I do, I’m sure I’ll best see it when my clothes start getting a bit looser.
    Fingers crossed, I just want to feel “normal” again xx

  30. I was diagnosed with Hashimoto’s 30 years ago and have repeatedly tried levothyroxine with the same results mentioned above-relentless weight gain. I have gone for periods with no treatment with better results. Natural thyroid works far better, but recently I have gone back to very low dose T3 (5 mcg once or twice daily). It works far better for me-my thyroid shrinks (it is normally somewhat enlarged with thyroxine or nothing) and I feel much better.
    When I first started in practice in the 70s T3 was considered superior for hypothyroid pets, then suddenly T4 became the only drug generally prescribed in human and veterinary medicine. I never found that T4 worked well on my patients. I suspect the switch to T4 had to do with drug companies pushing the product that brings the most profit to the most powerful among them. Some of our best and most life-saving products have been pushed off the market to make way for more expensive and risky new options.

  31. I have hypothyroidism and have found the same to be true of weight gain. My family didn’t believe me. I bought a step tracker (smart phones have them as well) and even though it showed I was very active I still had the weight gain. My family backed off. I don’t know why I didn’t think to show my doctor. If we do that maybe some of them will listen.

  32. I have been diagnosed with hypothyroidism and started taking Armour bio identical thyroid hormones six weeks ago. It stopped my hypersensitivity to the cold but I found that I have become breathless and began getting chest pains which I’ve never experienced before. I am living under a lot of stress due to my husband having a debilitating illness which led to him giving up work. My hypothyroidism was apparently stress induced but I’ve decided that I’d rather feel the cold than run the risk of having a heart condition. I know we are suppose to consult our gps before altering our medication but when I spoke about my breathlessness I was sent for a chest ct and put on antibiotics. The chest pains are an indication to me that I need to look for a natural way to control my thyroid issues

  33. Follow-up to my post of Feb 24th

    My weight is gradually creeping down and I have now lost 16lbs since January. The symptoms I mentioned disappeared after a few days and I’m still on 175mcg. Update in a month or so.

    Mary

    • Follow-up to my post of April 4th

      I have now lost 22lbs (10 kg) and dropped a dress size since Jan 5th 2016 after cutting out refined sugars from my diet. Still feeling great and have now added a Body Pump (light weights) session to my weekly exercise. Still on 175mcg thyroxine.

      I am not missing biscuits, chocolate bars etc. I make my own choc treats with cacao powder recipes and stevia or erythritol sweeteners. This is the easiest way I have ever lost weight compared to the calorie counting methods etc.

      Update in another month.

  34. I am 29 year old female who was given Levothyroxine for an under-active Thyroid. I experienced an increase in symptoms and my docs upped my dose to 150mcgs. Levels all read great but I was rapidly gaining weight (I’m 5’10 and very athletic, went from 150 lbs to 175 in a matter of months despite increasing my workout and eating better than I have ever eaten). I asked to try a name brand of the meds (Synthroid) and continued to gain weight. After one year, my levels still read in the “normal” but I was depressed, overweight, my muscles ached, my joints were stiffening up, and I had zero energy. My doc suggested I work out more and eat better!! If I ate any less I would have been starving. So, I just quit. I don’t recommend this to everyone, but I feel amazing. It has been one month and I have lost weight, I am no longer puffy and bloated, my energy has increased and my body doesn’t ache. I feel young again! I don’t know why and I don’t care, all that matters is I listened to my body and it said “no way!” on the Thyroid meds. Good luck to anybody who has the same issue. It really sucks that doctors aren’t taking the weight gain seriously.

    • hi denise, thanks for sharing your experience. i have been through more or less the same and decided 3 days ago to stop my medication. i did not ask my doctors (i saw 3 different ones throughout 2 years because i was unhappy with the results. nobody cared to listen to me really.) i decided to listen to my body. despite very healthy eating & regular exercising, my body aged all of a sudden and started accumalting weight. that makes me obsessed with each thing i put in my mouth. a life as such is just not possible for me. i hope i will see positive results like you did in about a few weeks.

      • Hi Seden,
        I have been eating way too much the past couple months since I started it too, but not until tonight did i google it and see all these people who actually ARE gaining weight.
        I’m kind of mad now. Is all this worth it? I think I cut my 100mcg in half for the next week and see how my appetite goes. If it’s not alot better, than i’m stopping it. I’m not going thru life with a puffy face and big belly. Forget that.

    • Denise: I have been in the same boat. I feel so horrible and depressed. I have never struggled with my weight like this. I also have the belly bloat and puffy face. I am going to stop tomorrow. I was wondering if you have an update?

  35. I have had total thyroid remover due to thyroid cancer was taking 125mg now it has been increase to 137mgi have gain a lot of weight now I’m going through dispression been hospitalized for the depression meds I think should be something different for ppls to take to many side affects

  36. I had mild hypothyroidism diagnosed, and felt better at a a 50mcg dose (just one tablet). However after a year I began to experience symptoms of hyperthyroidism. Doctors of course, thought I was exaggerating or very unsympathetic. My father is a physician (pathologist) and so with his help I started lowering my dosage.

    About a month and a half after I went down to 25mcg, my irrational rage and angry outbursts went down, as did my unreasonable anxieties and paranoias. Additionally, i lost about 7 pounds. I had been on a very regimented exercise and diet plan and the weight was absolutely not moving. After 6 months at 25mcg, I still had the aforementioned side effects of really disproportionate reactions to the minor irritations of day to day life and was still struggling with weight loss. (The weight loss especially had been attributed to my being hypothyroid and my lack of diligence by my physician).

    I continued being my own guinea pig and started taking 12mcg every other day and did this for another 2 months, and felt even better. I have been off of thyroxine completely for one month and I have lost about 3 inches around my waist, 2 inches around my hips, and my arms and legs an inch each. My TSH has been normal and at the lower end this entire time. I have also lost another 8 pounds. (still maintaining regular diet monitoring and daily exercise)

    This is in no way medical advice. But it is advice to look at the whole picture. My hemoglobin A1C was never flagged as being over the border, but it has always been at the very borderline of being considered high. Often times there are issues of pre-diabetes, high cortisol, etc and your physician should really pay attention to these or you yourself as a responsible patient should bring their attention to it. I obviously do not blame the doctors as medicine is more of an art based on sciences than strict science, but doctors will be sued and have their licenses revoked for ‘negligence’ when trying too hard.

  37. Iam hypothyroidism patient..I gain my weight…when I using tablet for thyroid..so my weight loss or gain??

  38. I accidentally found this thread by googling underactive thyroid and weight gain! I am so glad I did!. I have been on 150mcg Levothyroxin since 2001 and have very slowly but surely gained weight over the years. I became over active a couple of months ago and my Levothyroxin was decreased to 100mcg a month ago and in that time I gained 8lbs! I eat sensibly, I exercise daily by walking and I just couldn’t understand why I gained so much weight so quickly, I thought an over active thyroid would help me lose the weight. It fluctuates daily, one day I can fit into my jeans the next day I bulge over them so could this be fluid retention? Two years ago I had a total hip replacement so walking 30 mintues a day came to a grinding halt and over that time I gained 2 stone. Walking 30 minutes a day definitely helped keep the weight off but gaining it at a fast rate on a daily basis is ridiculous. I’ve tried finding something to help with fluid retention to no avail. I did read something that someone had put on though but it’s only sold in America and is very expensive but she lost 1.5 lbs which has stayed off. For all of you in America it’s called Pedialyte and it was recommended to her by her Doctor. He recommends 16oz unflavoured Pedialyte mixed with 48 oz. water and drink this mixture two consecutive days weekly. After the first day she noticed a significant difference and after the second day weighed 1.5lbs less.

    I’m going to go cold Turkey for a month and monitor progress. I am miserable, I’ve gone from 9.3 to almost 12 stone now and I hate myself and like everyone else, all the Doctor had to say was, you’ve got an underactive thyroid. Great, thanks for your help. I even googled how and when to take Thyroxine just in case I’ve been doing it wrong! If I carry on gaining weight, the weight itself will become an issue and then I’ll also have another mountain of problems like Type 2 Diabetes!!! The bloating, dry skin, dry falling hair and broken nails are hard enough to deal with let alone the weight gain.

    I’ll report back with my findings, I’ll try anything now. Today I weigh 11.10! Hopefully, in one month’s time I’ll weigh 11 🙂 I live in hope!

  39. My test result was 4.250. My doctor put me on levothyroxine. 50 two weeks ago. I’ve gained 5 pounds and I eat 1350 calories a day and walk 4 to 6 miles every day. Prior to the meds, no hair loss, not overly tired, not constipated and on and on. I have read all posts here and just flushed my levo down the toilet. I am not taking the crap. I’m angry my doctor gave me this and am going to see an Endo specialist for further evaluation. I’m also 65 and have Stage 1 COPD. I’d be curious to know what your test results were.

  40. I have been talking thyroxine for 14 years never before had a weight problem I was 7.5 stone now 9.9stone did go up to 10.9 stone but I eliminated sugar totally don’t eat anything sweet except fruit I went down to 9.9 stone but can’t shift anymore stuck I run regular and keep fit but cannot lose a pound very annoying I also take iodine and selinium to help my body convert t4 to t3 as doctor won’t give me t3 which I think would help my weight go back to normal although taking iodine and selinium hasn’t lost my weight i feel better more energy – and strangely I can lose weight abroad in hot climate as my thyroid isn’t trying to keep me warm therefore can do other jobs which it doesn’t do in cold Scotland x

  41. I was on Cytomel for a couple of years but in-hospital they changed it to Synthroid for convenience, and ever since then i have gained 20 pounds in three months, at 5′ 3″ …never before had I had any weight problem. It looks like the Synthroid could be the problem but if i switch back to Cytomel, will things readjust or will i have the same problem? Why or why not? Thanks for anyone who can explain this !

    • Pamela, I was on Synthroid for years and gained 25 pounds. Nothing I tried helped. I did some research and found that Cytomel helped others as far as the weight gain, so I had my doctor switch me to that. After a month or so the weight just started dropping off. I lost it all! But then a couple of years later, I was told I need to add Synthroid back since it’s for T4 and the Cytomel is T3. Begrudgingly I did. Well guess what, I gained 25-30 pounds right back. I ended up switching doctors and he had me try Armour Thyroid. We changed the dosage until my labs came back normal, but I don’t feel any differently and I still can’t lose weight no matter what I try. So to answer your question, I think switching back to Cytomel would help. I myself never even knew I had a thyroid problem until my labs showed it. I think I’m going to stop taking the armour thyroid and see if I can lose the weight.

  42. Wow I’m so glad I read all ur posts. About two yrs ago I had a blood test come back that the dr said meant I was hypothyroid. Supposedly my tsh was 100 something… But never before had I ever had anything wrong. She placed me on 75mcgs of levothyroxine… I felt like crap but she said it was working cause magically my next blood test was “normal”. After awhile I still felt awful and heard that generics could be the reason so I asked to be switched to Synthroid (actually I asked for the dessicated thyroid or natural and she said NO) so a yr now on synthroid and I still feel terrible. What worries me the most is in the last two years I have gone from weighing 160 to 275+ . After reading this I am done. Gonna stop taking this crud and let’s see what happens… I’m starting to believe this quack of a dr was wrong and the blood test was mixed up! We shall see

  43. Have been on .150 mug of synth rood since 1988 and was fine and healthy. Four months ago doctor changed my dosage to .137 mcg based in annual blood work. I had felt fine. In four months have gaine almost 15 pounds inspire of eating less and doing same daily exercise.
    So frustrating!

  44. I have been on L-Thyroxin 75 for well over a year and only managed to loose about say 10 pounds, my weight was stable for the last few months, however recently in the last 2 weeks i packed those 10 pounds right back on, i believe it has stopped working, despite eating right and working out 7 days a week, i am just so darn angry about this..ugh, and now i have to wait 4-8 weeks to hear from my Endo doctor as my GP believes it is a hormonal imbalnce that is preventing me from loosing weight. ugh

  45. Another update – have now lost 28lbs since January by greatly reducing sugar intake – baking with erythritol/stevia. (No shop bought cake/biscuits.) My regular blood test and review with GP resulted in reduction from 175mcg to 150mcg a week ago. Still feeling fine. I wish I’d tried this years ago.

    • Hi all. I now weigh 15st 3lbs from 17st 6lbs in Jan 2016. My thyroxine was reduced from 175 to 150 in July. Results of a follow-up blood test a couple of weeks ago showed my TSH still very low and T4 levels slightly higher than previous test so I am now on 125mcg daily. (I have never taken less than 150 since diagnosed in 1986 at around 12st 7lbs.)
      I still feel good – still on my no refined sugar way of eating.

  46. Another update – just spoken to GP who says level of thyroxine needs to be increased only on (25) and said this probably has made the thryroid worse. Blood tests results back next monday going to ring Tuesday to see what they reveal and speak to GP about next steps – still not keen to stay on this as no one seems to get the balance right and still people gaining weight. Only been on it 6 weeks and gained a stone in weight not happy. Gp advised to take 2 tabs making it up to 50 until next week. Keep you all posted.

  47. I put on 7 stone (14lb in a stone) over 5 years on levothyroxine and stopped gaining weight when I switched to Erfa 12 years ago but still haven’t lost the 5 stone.

    I’ve been gluten free and taken homeopathy and candibactin br and have this week reduced my erfa down to zero and still feeling OK. I recommend a book by Dr Izabella Wentz. Fingers crossed there may be a chance I am in remission? I would so love that…I will listen carefully to my body and start erfa again if I need to. The homeopathy was begun 6 months ago approx and it was personalised from an astrology chart using a German method of homeopathy.

  48. I wonder about thyroxine – and thyroid issues in general

    and long term affect on adrenals.

    Pituitary (TSH) is also manipulated by these drugs.

    I have no thyroid, and have to take something – but the balance in Armor is not quite right, either. I’m doing okay, but still breaking nails, balding, low energy, slow, breathless.

    I think it needs to be addressed as a whole endocrine balance, not just a “thyroid problem.”

  49. I started to gain weight prior to being diagnosed with Hypotyroidism. I was placed on 150mg Levothyroxine and 6 weeks later my thyroid levels are still really low along with my mood as I continue to gain weight whilst only taking 2 drinks of Fortisip a day. If I eat a normal diet my digestive system can take a week to breakdown the food leaving me blotted and constipated.

  50. I have been on levo for around 15 yrs and im sure it has caused me to put on weight,However I have recently joined Slimming World and lost 2 and a half stone and now ny Gp has lowered my thyroxine dose by 25 g Im currently on 150 .im wondering if its my weight loss that has caused me to have to lower my dose .

  51. I was put on 25 mg of eltrocin a week ago and I have put on 10 lbs this is so frustrating because I’m 52 and it took me 1 yr at slimming world to loose 2 and a half stone also my throat is sore every morning I wake up and my hair is falling ou t I feel terrible on these tabs and like the rest of the comments here when I asked my pharmacist they just said it takes time to level out the gland but if I’m putting weight on at this speed I’m coming off them I’m gonna stop taking them starting today for a week and see is there a change and then I will go back to my doctor he put me on eltroxin for an under active thyroid and I actually feel worse xx

  52. I was hypo thyroid. I took thyroxin briefly and even though I gained energy, my stool turned whitish, which no one seemed to understand. In 2000, I tried again,
    taking Armour brand. In a month, I gained 30 pounds and was told to exercise more and eat less. I gave up. Since then, I have come to believe it is a liver issue. Even though liver tests are normal.
    So, I have done lots of lemon juice and non harsh liver supplementation. I am not losing weight, (I eat very healthy). I don’t believe it is a food issue. So I am still on a journey.

    Cheryl

  53. It has been very interesting reading all the comments above. I had Graves’ disease in my late twenties and ended up having all but 2% of my thyroid removed in my early thirties. Before then I was always slim. I am 49 now and have been on a very high dose (200) of thyroxine for years. I have slowly gone from being always slim to obese. Every time I diet I cannot lose weight. If I eat a normal healthy diet I put on about 2kg per month. On a constant diet I put on 1kg every 2 months. This has really taken its toll on me over nearly 20 years. I have had every test under the sun. Last week I had gastric sleeve surgery as it became obvious it was my only chance for weight loss. My weight had caused other medical conditions like high blood pressure and I was pre diabetic and having heart problems. In 7 days I have lost 3.5kgs which is half that of the other women who had surgery at the same time as me (we keep in touch). Pretty bad that I have to resort to surgery to put myself in a position where I can lose weight. Thyroxine is a curse for me. I have to take it, but it has ruined many years of my life.

  54. Hello
    Can I ask have any of you read The Great Thyriod Scandal by Dr Peatfeild?
    Or had tests on your adrenal function.
    My mum has had the same issues with weight gain and tiredness after her Thyriod was removed. She now has T3 and T4. She takes magnesium to help with cramps and still struggles with her weight. She is 73.
    We are going for a super healthy 2017. Try and cut down on bread and poor food. Just made some avocado chocolate mousse! And soups to keep food handy and stop snacking.
    It is so tough but don’t give up.
    T X

  55. Hi all, have read most of the posts here and while no expert I have suffered from both Graves at the age of 16 which almost ended my life til I was diagnosed getting me down from a healthy 80kg sport loving teenager to 36kg. Since 18 I have been hypo due RAI and had the same struggles perplexingly even though on 150mcg a day of Thyroxine. Two years ago here in Australia I came across a book by Dr Sandra Cabot which has since changed it all for me and in short as someone on the forum has said you can increase your blood levels of T3 and T4 with Thyroxine but unless it is converted to TSH your going nowhere fast. To do that you need a steady supply of selenium in your diet which sadly nowadays needs to come from supplementation as it has been stripped from most farming soils. Selenium is needed to convert theT3 and T4 in to Thyroid Secreting Hormone, but please be warned, supplementation should not exceed 150mg a day as it will become toxic with consequences. Dr Cabot has changed my struggle with hypothroidism and I hope this can help most of you to start your research on the right track

  56. I have had my right side thyroid out which had dropped and was as big as a melon in my chest I am on 50mg of thyroxin still have weight gain problems 2 and a half stone up to now afetr 4 years this october absolutely fed up with different doctors saying no it doesnt put weight on you what a load of rubbish they have no idea its a hormone for gods sake and it affects people differently I have been on a salad diet for years and no difference my hair is still falling out and my body hair is nearly non existant its a pain in the ars-sorry to be so abrupt what this drug does to you just makes you so depressed and you feel abnormal its about time this drug was looked at with a different pont of view I am thinking about stopping this and taking my chances because there is nobody out there that can tell the truth. please reply if you have the same problems..

  57. Hello everyone, just seen this website and reading through your comments, am a 33 year old male, had cancer in my throat at 27, total thyroid removed and a vocal chord. 6 years later and check ups every 6 months am still cancer free. Thank you to the NHS and all their care. At the moment am on 275mg of levo a day, carbonate calcium chews and alpa casadol. I work in the building game and its very demanding and non stop, i don”t eat much during the day but just cant seem to lose weight, even my tea is healthy. not sure what to do, going to make appointment with the doctor but any advice would be helpful. Thanks

  58. Was diagnosed about 3 years ago with underactive thyroid. Was about 74kgs and felt a little tired, exercised every day, ate healthy, etc, etc. Within weeks of taking the thyroxine, I could feel myself gaining weight. I cut down to 2 light meals a day, heaps of walking, my job is also active, but it just kept going on. It does not seem to matter what I do. I have got lazy over the last 12 months because it does not seem to matter if I exercise or not, it just keeps going on. I eat 2 small meals a day, I have virtually no sugar in my diet, hardly any dairy, eat a lot of grilled meats and steamed vegetables, it just doesn’t make a difference. But at least I have energy, I don’t want to sleep all the time, and my voice does not sound like an aging jazz singer.

  59. I am 17 years old. I have undergone total thyroidectomy 3 years ago. Now I intake thyroxine tablet of 150mcg. I became very lean after the surgery. Now also I am very skinny. I eats lot of foods. But no use. What will I do to gain weight?

  60. I gained weight since I am using thyroxine 50mgr. My beautiful long hair falls out and I am sweating a lot at night and are getting very tired. I immigrate from South- Africa and never had a weight problem and was using . 25mgr Ezothyroid and never had a weight problem. Since I am in the US, my GP could not put me on the same medication that I used in South-Africa because it was not made here in the USA, I put on weight and my hair falls out. I have now decided not to drink this thyroxine after I red all the after affects.

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