Read the accompanying Sex, Withdrawal and Boundaries post first. We are looking for anyone interested in the material raised there to comment on or add to the set of questions below.
We are so insensitive to the fact that our skin and gut principally, but also bladder and maybe the inner linings of our lungs, our boundary, likely sees, hears, tastes, smells and encounter our world in a lot of ways that are important to our experience but which we may never pay heed to until our experience changes – until something is lost.
We need questions to build into the form below, or examples to illustrate some of the changes. There may be lots of phrases in languages other than English that bring home the point that our boundary is where it all happens.
Once we have this in good shape we will be looking to test it out in people with withdrawal problems and PSSD, PGAD, PFS and PRSD.
Do you have any changes in your vision?
- Blurred vision
- Double vision
- Night vision changes
- Altered color perception
- Misinterpreting things
- Hallucinations (seeing things that aren’t there)
- Visual snow
Do you have any changes to your hearing?
- Other noises
- Difficulty hearing as well as before
- Muffled hearing
- Painfully sensitive hearing
- Misinterpreting things
- Auditory hallucinations (hearing things that aren’t there)
Do you have any changes in your balance?
- A general unsteadiness
- Episodic loss of balance
- Vertigo (a feeling that you or everything around you is moving or spinning)
- Developed an unusual fear of heights
Do you have any changes in your position sense?
- Co-ordination has been affected
- Clumsy (eg. dropping things or banging into things)
- Problems with fine motor skills (eg. handwriting)
- A feeling that you’re unable to fully relax your muscles
Do you have any changes in your temperature sense?
- Altered temperature sense overall
- Times when your skin feels hot
- Times when your skin feels cold
- Times when you feel unexplainably hot
- Times when you feel unexplainably cold
Do you have any changes to your vibration sense?
- Any unexplainable buzzing or tingling sensations
- Any absence of buzzing, tingling or vibration when it would be expected
- Any loss in your experience of music – we hear music but our skin also senses sound waves
- Any change in your experience of wind – the feeling of wind on our skin partly stems from vibration receptors
Do you have any changes in smell?
- Complete loss of sense of smell
- Reduced sense of smell
- Distorted smells (things not smelling like they should)
- Foul smells
- You smelling different to yourself
- You smelling different to others
Do you have any changes in taste?
- Complete loss of taste
- Reduced sense of taste
- Distorted tastes (things not tasting like they should)
- Foul tastes (everything tastes unpleasant)
Do you have any changes in skin sensation?
- Altered or odd sensations round your body
- Creepy crawly feelings in your skin
- Painful sensations round your body
- Painful or odd sensations triggered by heat or cold
- Insensitivity to touch
- Extreme sensitivity to touch
- Insensitivity to a caress
- No longer ticklish
- Difficulty getting comfortable when lying in bed
- Kissing no longer produces the same sensation
Any changes in the “health” of your skin and hair?
- Urticaria (hives)
- My skin has become allergic
- My hair has changed
Apart from your genitals and nipples, have you noticed any changes in the pleasantness of touch in any other parts of your body? Is there a part of your body that you enjoyed being touched, but which no longer produces any pleasurable sensation or may even feel uncomfortable when touched.
Are you feeling pain or discomfort in unusual places?
Do you have any gastrointestinal issues?
- Digestive problems
- Pelvic floor dysnergia (the pelvic floor muscles don’t relax properly during a bowel movement causing difficulty in passing a stool. If evacuation does happen, the sufferer can be left with a feeling of incomplete evacuation.)
- Churning / noisy stomach
- Food intolerances
Do you have any bladder issues?
- Burning sensation
- Weaker stream
- Post-micturition dribble (a small amount of urine leaks out after you’ve finished urinating – sometimes when you get up from the toilet or after you’ve put you’re clothes back on)
- Frequent urination
- A feeling that your bladder or urinary tract isn’t completely empty after urinating
Any changes to your sense of thirst and hunger?
- Disturbance to sense of thirst
- Disturbance to sense of hunger
- Cravings for new things
- Disliking food or drink that you previously enjoyed
Have you had any unusual experiences with local anesthetic (eg. after a dental procedure or minor surgery)?
- It took longer than expected for sensation and motor function to return to normal
- I have been left with ongoing reduced sensation
- I have been left with ongoing reduced motor function
Any other problems that may be linked to altered sensations?
- Cough (we can cough because of a disturbed tickle sense)
- Altered sweating