Launching the RxISK Prize has been eye opening. Everyone who has donated or will donate will hopefully get some sense of this. If you’re not getting it, you need to remember this Prize is yours not ours. Those donating money and those donating sweat own what is happening and are stakeholders with rights in what is happening.
You will be fully involved if you’ve had a shock realizing you are now a Capitalist or part of a Capitalist group (plot). Having Capital means having Power. Rather than fitting in with other peoples’ plans, there is a chance to set the agenda and get them to fit in with yours.
If all the research time people with PSSD, PFS and PRSD had spent on researching their condition were costed up and added to all the money spent getting various drugs and herbs and treatments and to the opportunity costs lost because of all the time on research and trying treatment options and instead had been put into a Prize pot, we could likely spread word about a $1,000,000 Prize.
Unfortunately instead we have been feeding the “healthcare” machine that has injured us – making it more profitable.
Gathering around a Prize is a way to turn the tables. It sends several messages to the system. One is – we set the rules.
A second one hinges on what people gathered around the Prize do. If you stop using the system – going to doctors, and taking risks with remedies, the System will be forced to take notice for reasons that are surprising.
People wrecked by drugs are like shipwrecks that give rise to an oil spill. Like the Exxon Valdez oil spill we increase GDP. Healthcare Systems don’t want to make anyone better – they want to be used. The more drug wrecks, now possibly the leading cause of Healthcare usage today, the greater the healthcare GDP. Uniting and ensuring the System works for us is not something the rest of Healthcare will necessarily appreciate. Sounds paradoxical but there it is.
In addition to money, a lot research has flooded in. People with little or no background in healthcare seem to be better at research and chasing leads than doctors are. One of the key insights behind RxISK has always been that Motivation is worth more than Expertise.
Among the materials sent in have been fascinating details on the role of the Vitamin K family of compounds. I had no idea about any of this. What some of the detail makes clear is that almost everything in the body is connected to everything else in a myriad intricate ways. When we take any medication we do so at our peril. Pill-taking is a triumph of optimism over sense. Even if we escape apparently unscathed, we will be changed.
There has been other fascinating proposals involving St John’s Wort, RU486, as well as treatment induced liver dysfunction and the role it may play.
Above all there have been more details of people who have had temporary relief after taking a variety of medicines such as selegilene – more often than not after stopping them. This temporary relief and especially the frequency with which it occurs after stopping other medicines feels like an important clue.
We will collect all materials sent in and make them available to anyone who figures they might have a possible treatment – these are the kinds of observations a successful treatment may also be able to shed light on. In due course with the permission of those who have forwarded materials we will make them available to everyone.
PSSD and PRSD and for obvious reasons PFS are worlds in which men have been most vocal. But there is every reason to think women are just as much affected. And interestingly, at present there is a slightly higher rate of donations from women than men.
In response to suggestions we now have a RxISK Prize page in the main menu, which has a Donate button. It also shows the current total and where donations have come from. We will be updating the figures probably at weekly intervals or perhaps more often.
We have had 31 donors give an average of $250 each. This has been very impressive.
We would be interested to hear any other ideas about graphics that might be worth displaying to capture wider or media interest.
We have calculated these figures based on dollar per head of population – so if you live in the Isle of Man, Monaco or even one of the Baltic Republics you have a chance to take your country into a position of global leadership with just one donation. Where are you Spain, France, Brazil and Argentina? North Korea are probably spared these problems – no one there is probably let take Propecia given that a certain American reputedly takes it.
What we need is for anyone suffering significant side effects from any drug – not just PFS, PRSD, or PSSD to get involved and own what is going on. P-SSD-FS-RSD is just the start. It is a good place to start because it has mobilized a lot of people and motivated them to engage in research etc in a way reminiscent of the AIDS community in the 1980s when they formed ACT UP.
Drug Wrecks are killing many more people every year than AIDS did at the height of the epidemic. We need you to take a stand and bring this epidemic under control and these conditions are a first step on the way. After the sexual effects, there are a range of other problems Propecia, Acutane, Antidepressants and Antibiotics like the Fluoroquinolones among others cause in common like brain fog, chemo brain, sensory disturbances, food intolerance and withdrawal syndromes. The hope is that a cure for P-RSD-FS-SSD will open a door on how to help these other conditions also.
This Prize will not be awarded for an elegant idea.
We have a core set of volunteers who have been badly damaged by these drugs. The Prize will be awarded if they say something has made a very significant difference to them.
But they are wary of taking anything and regard all doctors, and herbalists, and complementary therapists with a lot of suspicion. They have seen a decade of good ideas come and go. They are only likely to be persuaded if you can provide very good evidence that the treatment works – ideally by having someone who can make a convincing case they have been cured.
The second step is it has to be safe. You will have to be able to persuade several members of the RxISK Team who don’t have P-SSD-FS-RSD to take it also.