The Princess and the Frozen Pea: PGAD

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December 15, 2017 | 10 Comments


  1. It is so sad that the medical establishment wont treat conditions like PGAD and PSSD seriously.

    I just read an article about two women who took their own lives after suffering from PGAD for years. One woman had the condition for 16 years before she decided to take her own life. She waited so long and tried so hard to help herself, before finally giving up.

    In my experience it is often the treatment from the doctors and the medical establishment that often leads people with these conditions to resort to suicide.

    In my case the response i have had from doctors over the years has been really, really bad. I still cant get over how bad it has actually been. In fact i cant really think of any ways it could have been worse.

    The psychiatrist who prescribed me citalopram which caused my PSSD, still to this day wont accept that my ongoing sexual problems could have been caused by the drug he prescribed. I have been trying to get him to believe me for about 10 years now, even sending him studies showing PSSD exists etc, but he continues to stick his head in the sand, and claim my ongoing sexual problems must have been caused by other factors. I have lost every single last shred of respect for the man, for the way he has been able to ignore the very obvious evidence as to what has caused my PSSD (he has repeatedly disputed that PSSD even exists).

    But then recently when i have talked to a large number of pharmacists about PSSD, they have readily accepted straight away that PSSD exists, and have even suggested that it makes sense that the sexual side effects might persist for some people, and they have been sympathetic and understanding about the distress living with PSSD must cause.

    It is strange how you can get such a polar opposite reaction from two closely linked professions working in medicine.

    Why can pharmacists readily accept and believe that PSSD is real, or at least accept it as a real possibility, while doctors get so defensive and hostile, and repeatedly flat out deny the condition could exist, even when presented with evidence to the contrary.

    It really makes no sense to me.

  2. Thank you for finding the courage and such precise analysis to allow us to gain insight into yet another devastating ADR of psychotropic drugs.
    The text so clearly identifies the agony and isolation.

    I wanted to respond immediately but after reading and re-reading, I felt at a loss to know how.
    That is, until I scanned “PULSE” this morning – a widely browsed G.P. magazine which I have thumbed for the last 42 years.

    “OVER 42,000 DEMENTIA PATIENTS ON ANTIPSYCHOTICS” reads the headline.

    According to new figures released by NHS Digital: –
    “42,991 people (9.4%) out of the 458,461 on the dementia register in England were given the medication in the six weeks to November”.

    “It is the first time that anti-psychotic medication prescription data have been released”.

    Just a minute, isn’t there a profound prescribing dilemma here?
    Shouldn’t there be?

    Many of the most serious toxicities of antipsychotics are almost indistinguishable from the progressive, irreversible, intellectual impairment which defines the pathophysiology of dementia: – a deteriorating, destructive organic brain disease.

    Most evidently: – the behavioural and psychological toxicities of antipsychotics.

    It is generally accepted that psychotropic drugs may be more toxic in the presence of organic brain disease.

    This surely increases their risk of antipsychotic induced akathisia, aggression and violence with immense suffering in the now toxic as well as dementing patient.
    A parallel exacerbation of anguish and suffering in their families and carers would not be difficult to conceptualise.

    The next danger is now antipsychotic dose escalation and psychotropic drug “augmentation” with potential for further life threatening adverse drug reactions.

    And what if?

    What if these poor people with dementia, with akathisia, with tardive dyskinesia, with their impaired memory converted to stolen memory by psychotropic drugs —

    What if they also endure the suffering of PGAD so graphically identified above?

    What if in their inexpressible agony they lash out in a desperate, hopeless cry for help in their “Zero Tolerance” caring environment?

    • Tim.
      Would you like to run for Minister of Health?
      Thinking ahead, or even better, right now.

      All you said and more.

      Why wouldn’t ‘dementia’ patients or any patient brought to LTC facillity outta their own comfortable home, run away?

      Ergo: locked door. Ergo: screaming. Ergo: drug to “calm”. Jesus have mercy.
      Not to forget, I have heard of enough patients or staff availing themselves of vulnerable patients, sexually etc. They may need to drug ME to stop MY nightmares, and I’m not even afflicted. Take your eloquence to the larger media, on the road or something. Not just a “reply”, please Tim. And all. Thanks.

  3. Thank you for sharing this post. I totally relate to the Princess and the Pea analogy. I can feel the metal under the layers of cushions in a chair.

  4. Tim i totally hear what you are saying. It is really bad how vulnerable elderly people are treated. The antipsychotics they give them, can cause all sorts of nasty adverse reactions, and they also shorten their lives, and in effect they are used in a form of government induced cull.

    It is a real scandal what has happened with prescription drugs and all the damage they cause. It is almost like a silent holocaust, with many thousands killed each year. I really hope that as like the real holocaust, people eventually find out and this large scale mass murdering of large sections of the population is finally acknowledged for what it is.

  5. Any soul that has to tolerate any unnecessary suffering, is indeed, so brave.
    I’m so sorry that you have to endure so much discomfort.
    It is not right that many have to suffer.

  6. After re reading my last comment, i feel “murder” might be a bit too strong of a word. I doubt the drug companies deliberatly set out with the intention to kill people. But they know the damage these drugs can cause, and continue to sell them en mass, whilst denying the harm done. It is basically the same as murder.

  7. Fyi…. back in around 2004 I took a survey on a women’s Psas support group,which it was called at that time. I was convinced that my symptoms occurred as a result of my going off SSRI antidepressants cold turkey. Over 60% of the women responded said they’d been on SSRI antidepressants…paxil being one of the most common. I tried to share my results with many sources. In 2005 I attended the isswsh conference and presented an abstract that also appeared in the 2005 issue of the journal of sexual medicine. Dr. Goldstein was my doctor at the time and still is. Have you contacted dr. Irwin Goldstein in san diego? He and his wife sue run the sexual medicine clinic there ( have to look up the exact name of the practice). You are quite right…everyone tries to mix up a whole bunch of other acronyms when ssri antidepressants are staring them right in the face. LF

  8. I suffered with PGAD for about 8 years, then someone treated me with acupuncture. I had a blessed 10 months without symptoms. Then it came back. My acupuncturist had retired, so I was sent to another one who “read my formula” and after 3 visits I was cured. I spent 2.5 years without a symptom, but the was prescribed Trazadone to sleep. When it made me congested, I went off of it, only to have PGAD start up again! That was 5 months ago and this time, for some reason, the acupuncture treatments didn’t work and I’ve been in hell trying to find more and more information. I wish more people would tell their doctors so that more research could be done.

    • Hi Kriie, I was wondering if you ever found an effective treatment. My symptoms started with Trazadone as well and I am very concerned.

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