When Asthma leads to Suicide or Homicide

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June 3, 2019 | 15 Comments

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  1. AntiDepAware‏ @AntiDepAware Jun 1

    Mother says that her son’s self-inflicted death was caused by asthma drug Montelukast (aka Singulair). https://mol.im/a/7095063  via @MailOnline

    https://www.dailymail.co.uk/news/article-7095063/Rugby-playing-law-student-21-took-life-suffering-anxiety-asthma-drug.html

    This is Nicholas telling his story

    https://www.bing.com/videos/search?q=montelukast&view=detail&mid=EC171EA00633B77CEDE2EC171EA00633B77CEDE2&FORM=VIRE

  2. This is becoming an international crisis …

    In the USA, the FDA’s Pediatric Advisory Committee will meet this fall to review the warnings on Singulair. A group called Parents United for Pharma Safety and Accountability is urging anyone whose child has had problems to report them online to the FDA by June 30, at this link:

    http://www.fda.gov/medwatch

    In Australia the Montelukast Side Effects group has been organizing for quite awhile. Check them out on Twitter at @MontelukastSE or on their Facebook page:

    https://www.facebook.com/montelukastsideeffects

    There is a concerted campaign to “exonerate” this drug through highly dubious research. Prof. Robert Gibbons has reviewed insurance claim data (available only to him apparently) which he claims disprove any link. But then, he performed the same favor for SSRI antidepressants …

    More recently, a study done in Taiwan appeared to find no link, and was presented with great fanfare at the US conference of Chest Physicians. But according to PUPSA it’s possible these reactions (which may occur in as many as one in eight kids in Europe) are less common in East Asian children for reasons of genetic variation … and that the study was done in Taiwan precisely in order to get a more reassuring result.

    Gosh. Would responsible scientists (or drug companies) really do that?

  3. Singulair, Montelukast: Asthma medication linked to serious psychotic episodes in children ABC Australia 7:30 report Mon 5 Sep 2016 “In Australia, it was a very different story. The Therapeutic Goods Administration didn’t insist on box warnings and instead advised doctors to warn their patients about the risks. But the mothers say they were never warned.” https://www.abc.net.au/7.30/singulair,-montelukast:-asthma-medication-linked/7817264

      • As MoS investigation reveals yet more evidence of pill’s sinister side-effects…

        Why DID health chiefs clear the asthma drug that can make children suicidal?

        https://www.dailymail.co.uk/health/article-7119153/MoS-investigation-reveals-evidence-montelukasts-sinister-effects.html

        As a result of the price drop, in 2016, prescribing watchdog the National Institute for Health and Care Excellence (NICE) issued guidance recommending doctors offer the drug widely – a move that has saved the NHS almost £50 million, with GPs and specialists only prescribing the generic versions, according to official figures.

        In the wake of our reports, last night the Medicines And Healthcare Products Regulatory Agency, which is responsible for drug safety in the UK, confirmed an update ‘as a matter of priority’ which will be completed in August.

        The new leaflet will read: ‘Patients should be aware that… behaviour and mood related changes have been reported in adults, adolescents and children with montelukast. 

        • Juan Gérvas‏ @JuanGrvas Jun 12

          Asma.
          Montelukast. Tartamudez. Advertencia sobre acontecimientos neuropsiquiátricos y nueva reacción adversa identificada (disfemia, tartamudez). Vía @RaulCalvoRico https://www.aemps.gob.es/informa/boletines-AEMPS/boletinMensual/2019/abril/boletin-abril.htm#infoSeg …

          Montelukast: warning about neuropsychiatric events and new identified adverse reaction (dyspnea)

          Neuropsychiatric events in adults, adolescents and children taking montelukast are already known and appear in the adverse reactions section of the data sheet and the package leaflet. In order to further increase knowledge and awareness of them, warnings on this issue will be reinforced in the product information, indicating that patients and doctors should be alert to the occurrence of neuropsychiatric events. Patients and / or caregivers should be instructed to notify their doctor if these changes occur. The risks and benefits of continuing montelukast treatment should be carefully evaluated should they occur.

          Additionally, dysphemia has been identified as a new adverse reaction associated with the medication.

  4. I am worried that we are being punished for speaking up.
    Some whistle-blowers did not choose the role of speaking up against medicines that harm, lightly.
    I was harmed . Suffered in silence. The system failed me and the support was non-existent.
    You are on your own now and we will give you a label so that no one has to acknowledge the harm the medicines induced!
    Like Spruce eloquently states:
    ‘Some medicines can cause temporary harm. They may last decade or two however, sadly, some casualties are ruined for a lifetime!’
    There is still a lot of work to be done in terms of changing the current culture and receiving some form of acknowledgement of the harms, that some medicines can induce. CB

  5. My guess is that we must continue to educate the ‘well’ of possible pitfalls in use of so many medications – once the ‘well’ become the ‘unwell’ it is too late. Too late for a return to a fully functional life and, often, too late for their conditions to be taken seriously by the very ones who could make a difference. IF THOSE AT THE TOP REFUSE TO TAKE THE DAMAGED SERIOUSLY THEN WE MUST CONVINCE THE ORDINARY PEOPLE – AND OURSELVES – THAT THE ‘DAMAGED’ WERE ONCE ‘UNDAMAGED’ AND SHOULD BE OUR REMINDERS OF WHAT CAN HAPPEN IF WE MISPLACE OUR TRUST!

  6. Mary I agree with you that the trust issue is a nightmare . I do a simple thing still by using a marker pen to leave messages where ever possible like ‘do you take prescription drugs? – see Rxisk.org’. Who knows if they might alert at least someone..who then alerts some one else. So where do people go when trust is totally lost and help is needed. Some to the groups they can trust rather than massively funded groups controlled by need to please their ‘masters’.. I go to a specialist shop where cannabinoids are sold and advice available – (but have seen the sprays sold in a tacky mini supermarket) the component which gets you ‘high’ is removed, I would prefer to make my own decision as to whether to buy actual cannabis . But the cannabinoids are classed as a food supplement so hopefully the medical establishment won’t get their mitts on them. They apparently work for some people and not others and can have side effects ,so as with other drugs, natural or not, it’s wise to google info as there are different recommended doses and in spray/drops or tablet form . It’s too soon to tell whether they are worth it for me and too expensive to give a proper trial with higher doses but whether they turn out to be a fad, a placebo or something very beneficial is possibly not known yet

    • At the end of the day, Susanne, if your experimenting works for you ( be it by giving you a feeling of ‘purpose’ or actual improvement) then it’s worth it, not only for yourself but for others who may read your words – here and wherever else you choose to leave your message. This is Shane’s purpose ( with me as spokesperson!) in everything that he does – to be open about what has happened to him and share that with as many different groups of people as he can find. His hope, by doing so, is that it may prevent SOMEONE, SOMEWHERE, from suffering as he has done. It also helps to get rid of the frustration of it all – and that’s far more in my case than his!

  7. Hi Rob,
    It concerns me that these suicidal/homicidal effects occur in very young children, as young as 4 years old.
    Imaging how this effects adults?
    This is why someone should invent something to see if a medication (s), is compatible for an individual.
    If these asthma medications come with a ‘box warning’, parents or adults would make better informed decisions, before anyone is subjected to devastating psychiatric side effects.
    If the USA have a ‘box warning’ for Singulair ( medication for asthma), why don’t the same standards apply for the Australian medication market?
    Imagine, what other medications induce this psychological disturbance?
    Sadly, many do not question whether the medication are inducing severe side effects because it is not highlighted in the patient information leaflet.
    Yes, Rob, it is like playing a ‘game of Russian Roulette’ with one’s life and it is sad that Australia is just relying on pharmacists or doctors to highlight the potential side effects.
    Under-reporting, does not acknowledge how many patients are suffering from severe side effects because it may be diagnosed as severe behavioural issues.
    This reminds me of a medicine that nearly cost my life and if there was a ‘box warning’ on it and the Doctor had explained to me the potential side effects, the unnecessary pain and suffering, I had endured, would have been avoided. If only I knew……………………….!

  8. Thank you for spreading awareness of the horrific, neuropsychological side effects of this drug. So many families have been affected and personally my child has been off of it for over 10 years, on it for 9 starting at age 7, and still suffers with anxiety and depression. Had I been presented all of the facts in a warning label or from her doctor or the pharmacist, prior to putting her on this, I would never have given it to her. Sadly, there isn’t an any research letting us know if/when all of the affected individuals will ever completely recover. Thank you again!

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