Sudoscan Saga & Propecia/Finasteride Survey
Sudoscan
Several months ago, we became aware of a device called Sudoscan made by Impeto Medical, based in Paris. It’s mainly used to assess peripheral neuropathy in the hands and feet. But the company also have a special adaptor for Sudoscan that has been used to test genital function and found disturbances where other tests haven’t. This is custom-made and isn’t commercially available.
We were interested in Sudoscan and particularly the genital adaptor because we think it has a chance of showing an abnormality in post-SSRI sexual dysfunction (PSSD) that might allow people to prove their condition exists – it has done so in diabetes patients – and might get research on a cure going.
One of the UK’s leading experts in peripheral neuropathy already uses Sudoscan and agreed to help us test PSSD, PFS and PRSD patients if Impeto Medical would provide us with the special adaptor.
Initial emails with the company’s representative seemed to go well, then all communication stopped. There were just no replies.
This led us to email everyone with PSSD on our books to encourage people to write to Impeto to let them know that people are dying in part because of the ridicule they face from doctors when they claim to have a problem that is not supported by any tests.
We have seen a stock response from Impeto to those of you who have written that appears full of the milk of human kindness and concern but protests that their hands are tied.
There has been nothing sent to us. No offer to bring 3-4 people over to Paris where the adapter is in use to get them tested. Nothing.
The image of Sudoscan above is taken from an article Here which says Impeto are at present suing another company for patent infringement. There are other articles by researchers claiming that the published results on Sudoscan are not all they appear to be.
So Impeto’s apparently humane response to readers here may not be all it seems.
Those who are affected with PSSD likely have skills enough to build a version of this device themselves. Something perhaps to consider.
We also hope in the next week or two to run a post about a test that has reliably picked up positive results in PSSD and likely would in PFS and PRSD also. Stay tuned.
French Articles
In 2018, an article about PSSD and persistent genital arousal disorder (PGAD) was published by the French magazine, Lyon Capitale. It was originally behind a paywall, but is now available to read free of charge: Un antidépresseur peut-il détruire votre vie sexuelle?
Le Lanceur, another French media outlet, recently published an article discussing PSSD and the announcement from EMA: Prozac, Zoloft, Deroxat… Des troubles sexuels après l’arrêt du traitement
Both articles are in French, but if your web browser has a auto-translate option you might be able to translate it into your native language. In Google Chrome, just right-click on the page (not over an image) and select the translate option from the menu.
Survey
Propeciahelp.com is currently running a survey on persistent side effects linked to a number of different drugs including antidepressants and isotretinoin in addition to finasteride, their primary focus.
To take part, you need to sign up to the forum and post a member story topic. The system then issues you with a personal invite to your registered email address which will allow you to participate. The survey is long, but it auto saves and can be resumed.
The survey was designed by people primarily involved with post-finasteride syndrome (PFS), and some aspects may not be well suited to PSSD. The questions about depression and anxiety, which are well suited to finasteride, are less suited to anyone with problems following antidepressants.
You can use any open-text boxes to add material if your sense is your experience of PSSD differs from that of PFS. The organisers will almost certainly appreciate the feedback.
This is an important survey that deserves support.
Comments
Leave a Reply to Janie
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It’s great to hear about matters that are developing out of our sight – surely the only way we can persuade more donations to the Prize Fund is by being able to add extra bits of information as we move forwards to invite others to donate. Great stuff!
Such a pity that Impeto Medicals seem to have been shy of supporting – let’s hope that they have a change of heart on the matter, if they are as genuine as they first sounded.
Lowri Turner ( know who she is I’m sure) when discussing MMR this morning came out with “We must not just trust everything that pharmaceutical companies tell us, we need to think things through for ourselves as parents”. I wonder if she’s aware of the struggles and concerns expressed here? Shall do my best to find a contact for her and see if she has any views on these matters!
On Wed, Aug 21, 2019 at 5:10 PM hanna.ayoub wrote:
There is a machine available at Sheffield hospital
Le 2019-08-20 21:45, Susanne Stevens a écrit :
Hanna Thank you.
What I am looking for is the genital adapter. I have been told Sudoscan is available in Sheffield UK but not for genital testing. Can you help at all, I cannot find any information on the website specific to genital testing..
ragards
S
can you go there?
Le 2019-08-20 21:45, Susanne Stevens a écrit :
Hanna Thank you.
ragards
S
from Hanna
who will be tested?
Regards
Hanna
In reply to my query there was no hesitation from Hanna until in response to her wanting to know who would be tested I said a young man with sexual problems who is too shy to make initial enquiries but wants the test – and he could if neccessary get a doctor’s referral. Then she sent me what I already knew and she already knew I knew – the roundabouts fudge stating sudoscan is available for testing hands and feet.
After that there was no further communication even after I had sent :-https://www.researchgate.net/publication/317077541_Measurement_of_electrochemical_conductance_of_penile_skin_using_SudoscanR_A_new_tool_to_assess_neurogenic_impotence
So what goes on at Impeto Medical when all communication concerning the adapter is blocked or sidelined with useless kindly comments? Sorry if above is a bit convoluted but it’s nothing compared with talking to Hanna J.
https://www.researchgate.net/publication/317077541_Measurement_of_electrochemical_conductance_of_penile_skin_using_SudoscanR_A_new_tool_to_assess_neurogenic_impotence
Copy of attachment sent to Hanna Ayoub (apologies for incorrect name above )at Impeto – it has the odd reaction of ending communication.
I really hope that a solution can be found to get around this soon. I cant understand why they wont send the genital adapter so people with PSSD can try to get some insight into what might be causing the condition, which could lead onto some possible solutions.
Both me and my mother have sent an email letter to the Jean guy at Impeto, explaining the devastating effect this PSSD has had on my life, and almost pleading with him to reconsider. We have received no reply.
I am still suffering everyday. Numb genitals, pleasure less orgasms, zero libido, needling nerve pains in my genitals on and off, emotional numbness, and battling thoughts of suicide because of all this.
I swear some days i feel i am going to be an old man with his life almost over before i get out of this nightmare.
I’ve sent them the email as well as asked on the webpage about the adaptor 10 days ago. No answer as of today.
Would it be too difficult to make one? There’s loads of amateurs making home made lie detectors which work very like the sudoscan . (On Videos) Am not recommending lone testing of any device without someone who is medico-tech savvy though.
I find it strange that Sudoscan has not published any photos of the genital scan – it could be done discreetly – would they have needed to get some kind of ethical approval to test the genital test separately to the hands and feet? Where would thAT be recorded? it’s got regulatory approval across the globe now so worst guess could be that they are not willing to fund sexual treatments or research?
https://www.impeto-Impeto Medical complies with State and Federal regulations regarding the manufacture and sale of EZSCAN and SUDOSCAN.
Updated: January 2019medical.com/regulatory-2/
I also hope this nightmare ends. They should at least show the time of day and explain furthermore about the machine so we can replicate it. I have done countless research and pinpointed a substance called ibogaine. It is used mainly for addiction to repair damaged chemical receptors and I found a few patients that have cured their condition using this substance in a specific dose. It would be great if we can test this theory as it’s entirely down to testing and finding out.