Several months ago, we became aware of a device called Sudoscan made by Impeto Medical, based in Paris. It’s mainly used to assess peripheral neuropathy in the hands and feet. But the company also have a special adaptor for Sudoscan that has been used to test genital function and found disturbances where other tests haven’t. This is custom-made and isn’t commercially available.
We were interested in Sudoscan and particularly the genital adaptor because we think it has a chance of showing an abnormality in post-SSRI sexual dysfunction (PSSD) that might allow people to prove their condition exists – it has done so in diabetes patients – and might get research on a cure going.
One of the UK’s leading experts in peripheral neuropathy already uses Sudoscan and agreed to help us test PSSD, PFS and PRSD patients if Impeto Medical would provide us with the special adaptor.
Initial emails with the company’s representative seemed to go well, then all communication stopped. There were just no replies.
This led us to email everyone with PSSD on our books to encourage people to write to Impeto to let them know that people are dying in part because of the ridicule they face from doctors when they claim to have a problem that is not supported by any tests.
We have seen a stock response from Impeto to those of you who have written that appears full of the milk of human kindness and concern but protests that their hands are tied.
There has been nothing sent to us. No offer to bring 3-4 people over to Paris where the adapter is in use to get them tested. Nothing.
The image of Sudoscan above is taken from an article Here which says Impeto are at present suing another company for patent infringement. There are other articles by researchers claiming that the published results on Sudoscan are not all they appear to be.
So Impeto’s apparently humane response to readers here may not be all it seems.
Those who are affected with PSSD likely have skills enough to build a version of this device themselves. Something perhaps to consider.
We also hope in the next week or two to run a post about a test that has reliably picked up positive results in PSSD and likely would in PFS and PRSD also. Stay tuned.
In 2018, an article about PSSD and persistent genital arousal disorder (PGAD) was published by the French magazine, Lyon Capitale. It was originally behind a paywall, but is now available to read free of charge: Un antidépresseur peut-il détruire votre vie sexuelle?
Le Lanceur, another French media outlet, recently published an article discussing PSSD and the announcement from EMA: Prozac, Zoloft, Deroxat… Des troubles sexuels après l’arrêt du traitement
Both articles are in French, but if your web browser has a auto-translate option you might be able to translate it into your native language. In Google Chrome, just right-click on the page (not over an image) and select the translate option from the menu.
Propeciahelp.com is currently running a survey on persistent side effects linked to a number of different drugs including antidepressants and isotretinoin in addition to finasteride, their primary focus.
To take part, you need to sign up to the forum and post a member story topic. The system then issues you with a personal invite to your registered email address which will allow you to participate. The survey is long, but it auto saves and can be resumed.
The survey was designed by people primarily involved with post-finasteride syndrome (PFS), and some aspects may not be well suited to PSSD. The questions about depression and anxiety, which are well suited to finasteride, are less suited to anyone with problems following antidepressants.
You can use any open-text boxes to add material if your sense is your experience of PSSD differs from that of PFS. The organisers will almost certainly appreciate the feedback.
This is an important survey that deserves support.