Drug Wrecked: Where Does Change Come From?

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April 24, 2017 | 35 Comments


  1. The change has to come from:
    Starting all the way up the top
    right down the bottom of the hierarchy.
    Looking at Western Medicine, one would assume that it begins with the Law, MHRA and end with professionals.
    There are many tentacles that are at stake here.
    It is like hand in a glove. They all work together.
    Once a complaint is registered, it must be documented and placed as a warning on the medicine, concerned.
    Too many ghost writers, bribery and corruption are at play, here.
    If patients like Heather and Spruce are taken seriously and not ignored, changes could take place right from up the top.
    If the top is not working, professionals should speak up and spread the word. This is the only way!
    David Healy, suggested bringing in a risk report with you.
    Some professionals may be intimidated by this! ~ I don’t know?

    Change could be achieved, if they really wanted to stop bad things from happening to people.
    Playing Russian roulette with peoples lives should not be a game of chance.
    If there are patterns going back from thirty years ago, surely, professionals would stop prescribing.
    If they see something is not right, spread the word.
    It begins with those who we trust our lives with, if the necessary gatekeepers are turning a blind eye.

  2. An elderly locum called me in to talk about Seroxat in July 2012.

    He had read David Healy’s books.

    On joining the new surgery I had put on the request for any previous medical history Abrupt Discontinuation Symptoms from Seroxat.

    I told him the whole nine yards and he suggested I complain to NHS Highland as he was of the mind that a Psychiatrist who ignores an emergency admittance to a mental hospital, does not check on medication which he had prescribed and written warning letters to the surgery about, was given Diazepam for cold turkey Paroxetine and released with suicidal ideation was something I should take further – with the proviso that don’t tell anyone I said so!

    a power structure that some of us get a glimpse of when we raise the possibility of an adverse event and our doctors dismiss us, or get nasty, and close ranks.


    I’m with you here, re the PHSO.

    I also took my complaint to the SPSO (Scottish Version) and I have their letter dated 3 December 2009.

    I won’t publish the whole page and a half as it contains too many references to ‘doctors’ and ‘medical practises’ but to give you the picture, these are a few of their responses:

    Dear …..

    I refer to your complaint with this office about…I have read through the correspondence that you sent to me and would now offer the following.

    The role of the Ombudsman’s office is to investigate complaints about those organisations providing public services in Scotland. Our office was set up by the Scottish Public Services Ombudsman Act 2002. This says we cannot normally investigate complaints until they have been through the whole complaints process of the authority complained about, unless it is not reasonable to expect this to have happened.

    I have contacted the Medical Practice and they have advised that you have not submitted a complaint to them in line with the NHS complaints procedure. However, I feel I must make you aware that even if you did complete the complaints procedure with the Medical Practice, there are other factors about your complaint which raise issues of eligibility for us.

    The SPSO Act allows us to look at many things but it also places certain legal restrictions on our authority. In particular, the Act says that we must not look at any complaint where the matter complained about happened, and you were aware of it, more than a year ago, unless we are sure there are special circumstances which would prompt us to take the complaint.

    From the information provided, it appears that your complaint stems from treatment provided to you in 2002/2003. This is at least six years ago and this is well outwith our 12 month time limit set by the Act. So, even if you completed the complaints procedure and returned to our office, we may be unable to pursue your complaint given the passage of time.

    If you wish to pursue your complaint with the Medical Practice raising your concerns then you should do so now by submitting a letter clearly marked ‘Formal Complaint’. You should outline clearly what your concerns are, why you are unhappy and what you would like the Medical Practice to do as a result of you making a complaint. You should note that you can only raise your concerns via the complaints procedure and the Medical Practice will be unable to deal with any references you make to the Seroxat manufacturers.

    I have closed the file on your complaint and, in accordance with our procedure, notified the medical practice by sending them a copy of this letter.

    I hope you find this information helpful …

    Gateway Officer

    The Practise Manageress interviewed the ‘doctor’ who immediately picked up the telephone and called the Doctor and Dental Union of Scotland who told her a ‘Patient’ cannot complain after one year.

    The ‘doctor’s’ boss called me from his Private Practice in Canada to tell me he was too busy to read my ‘Formal Complaint’ despite us having corresponded, by email, many, many times on the subject.

    I received a response from the MHRA, in a similar vein, to that above from SPSO.

    Lengthy, and, describing the functions of the MHRA and not what they could do to help me.

    So, yes, Spruce, I feel your immense frustration, that we end up, despite a huge effort on our part, with no validation or ‘feeling’ that they have any intention of helping us out.

    Even more so, when we have had to talk about intensely serious events, which is soul destroying in itself..putting ourselves out there, hoping that just ‘one person’ would appreciate not only how difficult it is to explain it all to a complete stranger but how difficult it is to get any sort of humane response from the ‘doctors’ who put us there..

    Subsequently, my ‘legal aid’ funded legal case had no qualms about nonsensical 12 month caps; it was the legal GP, who got paid a fat fee, who ruined my case .. with the complete denial that the SSRI was in any way capable of inducing that which I had explained ..

    Picture Perfect…Shipwrecked by the Cure

  3. General Medical Council. Prescribing Guidance: Raising Concerns:

    “You should also respond constructively to concerns raised by colleagues, PATIENTS, and carers about your own (prescribing) practice”. (My emphasis).
    Medico-Legal Professional Advice for Doctors:

    “You have a duty to understand the drug you are prescribing, including any adverse side effects, contraindications and appropriate monitoring”
    The immediate dismissal and rejection of accurate and vital patient reports of predictable and well documented SSRI destruction of sexuality is embarrassing, humiliating and profoundly distressing to read after forty years of medical practice.
    More scorn cast upon the duties of a doctor than adherence to the basic tenets of safe and patient centred, compassionate care.

    The documentation above appears to portray responses steeped in denial, ignorance and arrogance.

    Such prescriber rejection further wounds and destroys self esteem.
    It augments stigma and demonstrates a naive trust and belief in the distorted safety propaganda disseminated to prescribers by their drug representatives and a system of CME largely under the command and control of corporate interests.

    “Psychiatrist, in writing — — Post SSRI sexual dysfunction isn’t acknowledged by medicine as a real condition —-“.

    However: – Press release re professor of psychiatry advocating chemical castration on a voluntary basis for selected, volunteer sexual offenders leaving prison states: –
    “Two types of medication are available to treat sex offenders. The first are known as SSRIs (selective serotonin re-uptake inhibitor), commonly prescribed for depression, anxiety and obsessive compulsive disorder”.
    This is hardly compatible with denial of PSSD by other “academic” psychiatrists surely?

    Sir William Osler. Regious Professor of Physic. (Early twentieth century).

  4. Well, Tim, you’ve certainly caught them out haven’t you! How typical of those who think that their superiority blinds the rest of us to their ridiculous half-baked half-truths! Do they REALLY expect us to believe that there is something about sex offenders which causes an SSRI to work in a different way for them? The whole situation treats the rest of mankind (MAN as in human there!) as fools. We know that painkillers, meant to relieve pain, can actually cause more pain if over-used – that’s one thing. To suggest that a SSRI can create the equivalent of PSSD in cases where that would, possibly, suit the public ear and, yet, deny that possibility in general use, is so ridiculous – were it not such a serious condition, it would be laughable! How can these academics, who find denial so attractive, so readily gain our trust? What is it that keeps their status above questioning in the eyes of so many? It is easy to blame the pharma companies – and there is plenty TO blame there of course – but the problem has to be far wider than that. Could it be that the general public steer well clear of any matter which could see them as edging towards the ‘1 in 4’? If that could be it, then the fact that the young Royals have now spoken out so strongly about it being ‘time to talk’ could make a difference, I think. Unfortunately, with it will probably come the attitude of ‘it’s ok for them, they can afford the best support – that level of care is not afforded to the rest of us’ which will dampen any conversation. Whatever, on we must go – supporting each other, in the hope that our example may open the minds of the yet unquestioning public, eventually bringing them to the realisation that there is a lot in psychiatry which needs unpicking to get to the truth about every human condition and how they affect each unique human being.

    • Well, I certainly found the professorial denial of PSSD pretty questionable Mary.

      Perhaps this and other “experts” in mood disorders –
      (who deny the most devastating, common ADRs of SSRIs) – do not read the publications and press releases from a professorial psychiatry colleague who advocates SSRI use in his role of inducing voluntary chemical castration?
      Hard to believe perhaps.

      Here is another GMC directive.
      (Perhaps this may be optimistic when considering the ADRs of psychotropic drugs?)




      (My emphasis).

      • Excellent post the above Tim and an excellent thread. Been through it all and off course got no real justice. Prescribing errors are indeed common. My own case was exactly the above and what caused the harm(amongst other issues) was that other professionals that were involved in the case, a psychiatrist, a clinical psychologist and the village pharmacist(who was making plenty of money out of me being on venlafaxine when he should have stopped prescription on grounds of inappropriate, it’s not cheap stuff like Prozac, follow the money and get the answers) should have intervened to stop the GPs mismanagement and didn’t. Couldn’t pursue psychiatrist for negligence as he disappeared back to South Africa shortly after seeing him. According Lawyer he was under a legal obligation to stop the GP and instead completely hoodwinked me with to regard to how bad the GPs mismanagement of ‘work related stress’ was and claim against GP was only worth £5K on account of psychiatrists actions which were also negligent. Ombudsman Service investigation did admit that both the GPs referral to the Clinicall Psychologist and Psychiatrist were inappropriate and called into question the GPs competence in such areas. The referrals are absolute beauties, clearly written by someone who didn’t understand that the issues in my life at the time. A 21 yr old Mental Health Support worker earning £15K/year and having completed the SVQ in social care could have written a better referral letter(s). Mind you they would have probably understood that the issues was work related stress and that the solution was have a good holiday and get a different job. This was my solution, got my dream job then lost it cause venlafaxine turned nasty on myself and turned me into non functional zombie-dismisses by GP as ‘depression no longer responding to treatment’ This GP is only GP who ever thought I had an issue with depression in the first instance. He did note in my notes that I was of opinion that I was not depressed and didn’t need medication. The answer I got from Senior Partner to this question that I asked in my formal complaints ‘Why did GP ignore me telling him that I was depressed and could deal with issue without SSRI’s? was as follows; are you ready for it? ‘If you didn’t think you were depressed and could deal with things without medication then you shouldn’t have taken it’ Nothing like taking no responsibility for one’s actions eh! Blame the patient for the Doctors actions. Excellent thread this one, and for all those out there harmed needlessly, Keep Well and keep trying to make the most of your life in spite of the injustice against you

        • Thank you for your feedback, and for the powerful insight into your experience of trying to allow ill-advised, “pharma-deceived” prescribers of SSRIs the opportunity to both learn about their ADRs, and hence to avoid harm in others.

          Even though your adversity and experience of
          patient- blaming comes as no surprise, it is still painful to read.
          In our General Professional Training in the 1970s, we were taught and taught again to listen to our patients, their loved ones where appropriate, and learned so much medicine from this ever growing and invaluable lifetime experience.

          Perhaps a further quotation from Sir William Osler might replace the words for which I am lost here, (tailor-made for prescription psychotropic drugs perhaps?) :
          “The greater the ignorance – the greater the dogmatism”.

  5. I can’t speak for Spruce, but my own impression that stays with me, following my extraordinary treatment by the GP (whose Practice I’m glad to say we moved from shortly after this), is that some doctors make value judgments and maybe their power goes to their heads. We need to remember that they are just people, like anyone else. They can be jealous, jaded, prejudiced, and sometimes if you appear intelligent but maybe politely question something they say, they feel peeved or even threatened. Also, if you present them with a problem and in their gut they know it’s virtually unsolvable, maybe you are a thorn in their side and they want to get rid of you. What I’m saying is, they are not gods and should not be treated as such. They are partners in our quest for individual good health, so, like Tim says ‘listen to the patient, he is telling you the diagnosis’.

    I had only quite recently moved to that GP surgery because we’d moved house. Prior to that, we’d been with a fine team of doctors a few miles away, but sadly now we were out of their catchment area. In an attempt to justify myself as a reasonable person, ie that ‘honestly, the steroids REALLY have made me feel ill’, I defended myself by saying that I was not a difficult patient and my previous doctor, with whom I’d been registered for many years, and who I’d consider a good friend, would vouch for my good sense, like a reference. This really enfuriated the steroid GP, he went off like a rocket! I just felt that my face didn’t fit, nothing I could do or say would appeal to his better nature (if he had one, and I expect he did, for those who treated him with adulation) so it was better to find a way to get better without him.

    So I took private advice from a hospital Consultant who treated with Complimentary medicine. She advised using careful diet, B vitamins for the raging thrush in my mouth, and just riding it out. It took a year till I could watch TV again and concentrate to read without racing heart and roaring anxiety. She had no doubt that prednisolone (steroid) could have caused my symptoms. I had to keep working as best I could, but it was SO difficult. Some of the time I was endlessly pacing the room, with a feeling like a tidal wave of shuddering shaking overwhelming me continually. I’m afraid I’d long since realised the GP was useless, in fact, worse than useless, he’d been terrifying, foul tempered, and abusive. I moved to a Practice in another adjacent county, and on the whole, the treatment has been good, although I avoid consulting a doctor unless I am really very concerned.

    I tread very gently at all times. I make sure I am well informed. I am lucky enough not to need any medicines. But I could find myself in Spruce and others’ situation at any time, so I’m not complacent. I dread getting ill, as do so many folk now. It’s very sad that the medical profession, once so revered and respected, are often now feared and despised. I’m afraid they’ve brought it on themselves, but the pressure some of them work under, can’t be helping. It costs nothing to be mutually respectful however, and like Carla says, it pays dividends all round.

  6. I guess you might have had more impact than anyone David when you said to the court (and jury) in the Dolin case that you could guarantee if everyone present took a small dose of seroxat, within 5 minutes they would all be experiencing genital numbness…

    Wow. Beautiful. Have been following proceedings eagerly and am rather late in saying what a result. Brilliant – although it doesn’t bring Mr Dolin or all the others back. Nonetheless, RESULT!

  7. Why silence consumers who have been horrifically impacted by medicines?
    The information is already out there for all to see.
    What was hidden from our eyes is all out there for all to see.
    If one has not experienced anything deleterious, many believe what big pharma proclaim?
    When you experience an unpleasant outcome, this is when the awakening takes place.
    An experience can not be open to misinterpretation or based on the assumption that it is all a state of mind! This deliberately prevents experiences from being acknowledged. It is this negative mentality that has to stop! The false labels, lies, cover up’s and corruption are the very poor reasons why things don’t change..
    Many negative experiences, strikingly have similar outcomes.
    Those who speak up, have nothing to fear.
    For those who do wrong, they have everything to fear because when the masses awaken and gather, big pharma and many others have a lot of explaining to do!


  8. A result for you, too, Sally ..

    From Scotland to America to back again ..


    The_cat April 29, 2017 at 12:37 am

    Good point add neuroleptics, start with Zyprexa.

    “Olanzapine Withdrawal: Sally’s Story. … I had a couple of goes coming off too quickly, and suffered horrific withdrawal symptoms; headache, agitation, anxiety, insomnia, nausea and vomiting, and feeling appallingly ill. I am vomit phobic, so the sickness drove me back on to the drug, and the symptoms went away.” https://rxisk.org/olanzapine-withdrawal-sallys-story/

    I lived the Zyprexa/Olanzapine withdrawal nighmare too. Not typing it all out right now and getting angry that they still get away with it. I should add they gave me that poison because of Xanax Remeron withdrawal then when I got the Zyprexa withdrawal sickness getting off that rob your ability to feel pleasure from anything zombie poison those withdrawals forced me back on benzos that are at least somewhat pleasant to take till tolerance gets larger then your prescription and that whole nightmare.

    ‘Experts by Experience’ – snappy phrase ..



    “Beyond this, it should not be surprising that giving a poison for years should lead to problems. Is this prejudicial to say? There is no other time we pump our bodies as full of chemicals as when we take pills. The art of medicine lies in using poisons to bring about good but we should not be surprised when poisons poison, and doctors are going to commit professional suicide if they don’t alert patients to this risk. Having poisoned someone its also professional and scientific suicide not to work with them in order to map out just what has happened and learn as much as can be learnt.

  9. PSSD needs to be acknowledged by medicine as a real condition that is caused by SSRI’s, like tardive dyskinesia and type 2 diabetes was finally acknowledged to be caused by antipsychotics. Until this happens the drug companies, doctors, and the establishment will hide behind their argument that it isn’t acknowledged by medicine, and therefore they can continue to ignore it, and claim it isn’t real.

    Once it is acknowledged as real, it will be easier for research to be done and doctors wont be able to dismiss it, and they will be able to feel more comfortable talking about it. Also the misery, loneliness, and isolation caused by being told for years “that its all in your head” and that what is happening to you isn’t happening, will hopefully come to an end.

    I certainly know from my experience with PSSD that being told for years that PSSD isn’t real is almost as bad as living with the condition.

    I am hoping PSSD will eventually get the official recognition it deserves, and sufferers can get the validation they need. There is certainly a lot more stuff online about PSSD today compared to when i first realised i was suffering from it in 2008.

    I would like to see an official support line offering emotional support and advice on how to cope with PSSD, and what to expect in regards to recovery etc. Like there are support lines and organisations like battle against tranquilizers for people withdrawing from benzodiazepines etc.

    Its just getting the establishment to acknowledge officially that it is real. Once that happens, a lot more options should become available for people suffering PSSD, including the possibility of litigation. Of course this is part of the reason the drug companies dont want PSSD to be acknowledged.

    I hope Rxisk and Dr Healy can help in bringing about official acknowledgement for PSSD.

  10. James hits America ..

    Podcast? What podcast?


    We have to congratulate James on his choice of Podcast interviewees ..

    Interviewing Professors such as David Healy and the Patients; on their level, with a very natural ease ..

    “It must be hoped that the recent positive verdict in the Dolin v GSK case may improve medical awareness of SSRI induced akathisia and its resultant suicidal ideation and tragic completion.

    The Court transcripts provide insight into how this knowledge deficit has been created and maintained.

    TRM123 April 29, 2017 at 11:10 am

  11. ‘Evidence Live’ ..

    Peter Hitchins is not impressed with Rory B., our brilliant impersonator, who allegedly has Adult ADHD ..

    Stick to the day job, Rory – and stop peddling fake science  


    But specialist Professor Sami Timimi questioned current thinking about the condition, saying: “This might come as a shock, but, quite simply, there is no such thing as an ADHD diagnosis.

    “When you look for the research behind this affliction, you find that the cupboard is bare.

    Number of kids on drugs for ADHD rockets to 8000, as debate rages over condition


    Wigs to the ready ..


    • I found the Horizon programme regarding ADHD rather artificial to be honest. Rory’s actions seemed to me to be rather contrived – as if he’d been given a list of possible ADHD pointers and he reacted to illustrate as many of these as possible. The programme also showed a clip of life with a young autistic child. Here was a child, obviously out of control and lacking in self-discipline, searching for attention – and finding it in displays of poor behaviour. We saw crayon/felt pen marks on walls, a lock on his sister’s bedroom door so he could not enter to cause mayhem and other examples where he was treated as the enemy within his own family. NOTHING was shown, or indicated, as ways of supporting this child. A child with ADHD or any other aspect of behaviour problems needs far more guidance than a child who easily complies to rules. Locking a door is nonsensical – teaching him to RESPECT the property of others leads him to a better understanding of social interaction. Hard work? – yes. In need of drugs? – possibly, but ONLY to support him whilst he learns the acceptable way of interacting with others. A life on Ritalin? – NEVER! As for Rory’s possible ADHD – what difference would a diagnosis make to his life? Possibly answer a lot of questions about why he finds normal, everyday life so difficult (if that is so) and a realisation that he’s made it despite having a more difficult journey than most.

      • Well, I guess in the end it’s about understanding. Mary is right that a child who has issues with behaviour needs a lot of careful understanding and patience. But what do you do when a child cannot seem to respond to reason, who has no respect whatever for any kind of authority, who drives teachers and parents to distraction. A child who can switch on charm, can seem to accept a plan for good behaviour but disregards it the day afterwards, who lies constantly, and who has seemingly no sense of loyalty to those who love and care for him. Who betrays friends constantly. Who, by the time he gets married, does not have one single friend from his life that he can ask to be his Best Man and has to have his wife’s cousin instead. Is this ADHD or is it something else? Where it seems impossible to establish any kind of empathic relationship with your child, despite literally years of love and patience and kindness, I’m wondering what the answer is. Not Ritalin certainly, but could it be some kind of birth induced brain problem? I don’t think any child would WANT to behave like this, to drive away their school friends, to see their parents constantly exhausted. If these children are unable to feel calm peaceful concentration, and experience the satisfaction that brings, could they almost be suffering a mild form of AKATHISIA from a racing mind, but be unable to explain how they feel? It must be very difficult for them, and because their behaviour is disruptive, they are always in trouble and so they may feel this is their norm, and play up to it. I don’t think this applies to Rory Bremner really. I don’t think this is autism or naughtiness either. I think it’s an inability to ‘feel’ the same way that most folk do. And no drugs are going to change that.

        • Heather – you know that this will just be a layman’s reply but, to me, it sounds more in the area of ‘brain injury’ than ADHD etc. It’s a sad state of affairs whatever the cause – I would just like to know, out of interest, how the schools classified the problems. It is a known fact that concentrating purely on the ‘goodness’ displayed by a child with these sort of difficulties and completely ignoring the ‘naughtiness’ works wonders. It’s REALLY hard to do, for a teacher or other pupils, but the results can be quite astounding. The whole school ethos has to be ‘inclusive’ in a really tightly structured manner so that the expectations remain from one class to the next – and that is difficult to achieve in any mainstream school.

  12. At the risk of upsetting contributors to this Blog, I have to say I enjoyed Rory Bremner’s BBC1 programme last week about ADHD, which Annie has spotlighted here. I saw the brain scans of people with diagnosed ADHD (including Bremner’s) and it was clear that one side of those brains were not firing like those of most of us. All these things are not set in stone of course, but anyone who has lived with a child who manifests continuously the sort of exhausting behaviour that is commonly described as ADHD, it’s comforting to believe that their behaviour is not naughtiness, but something deeper. According to the programme, babies born too early and suffering traumatic births, can suffer a certain kind of brain change. This can be shown in brain scans. (In the same way that brain scans can show how RoAccutane-isotretinoin can affect the pre-frontal lobes so that 21% of their functioning is compromised).

    We were shown that the impetuosity of ADHD-type people is actually valuable. We were shown that the way they look at life is very helpful to us. All part of the rich tapestry of what makes the mix of all our differences so special. For me, as a parent who could never fathom why I could never deeply engage with my older son, who wanted constant attention and despite endless reasoning about realising the consequences of his actions, never seemed able to accept and act on it, I suddenly feel released from niggling worry. I feel I understand him at last. His behaviour is probably never going to change but at least I feel now that this was not my fault. He was born too early, he did have a traumatic birth, and he has found his own way through, even if part of that was by rejecting his parents. He never had any medication and I’m really glad about that. I hope he is. We see Rory Bremner taking some meds and being quite iffy about their effect. The next episode in this ADHD research series this week should be interesting.

  13. Anything but ‘their harmless drugs’ when your seeing a urologist in the waiting room surrounded by 90 year old men propped up by their walking sticks.

    Doctors have moaned about me exactly how you describe Spruce for the last 6 years (so I do not see them anymore, being raped sexually raped every second of every day is hard enough without the 2nd rapes). I guess the bullying has worked into stop bothering to see them even when my life has been really in danger (tried to heal myself and all sorts). Hell I walked around with the most crazy harm without seeing a doctor. If i just died and went away it would make it so much easier for them because I was just annoying them with the rape of my life away with their ‘harmless’ mass psychopathic drug dealing.

    I laugh all the time out of traumatized hysteria, I mean they were really nice doctors when I was small with giant tasty bright glow in the dark orange ‘medicines’ liquids laced with sugar to fix the cartoon weekly video indoctrination of how my brain is lacking this magic glaxosmithkline liquid.

    So for the last six years PSSD is met with glaxo and pfizers “psychiatric drugs have no permanent harms after 3 months” silly. it’s always a ‘magic’ 3 months no matter what hospital or doctors clinic I wasted my time showing up in. I asked is that what the NHS is teaching you, he said no but… who knows. Why so many say a magic 3 months. Why not 4?

    Alcohol on the other hand, of course that has permanent harms… it wouldn’t if it was prescription.

    The situation is so so funny, I am so sorry I am inconveniencing these psychopaths with ever mentioning my dick in some other mans captivity at my expense. What idiot gives this drugs to children.

    What a living nightmare every second. I just want to wake up. The jokes over.

    A timeline for psychopaths:
    Thalidomide (from concentration camp testing), Opoids, Nicotene, Benzo’s, Doctors Ditch The White Coats and Predator On Children, Antidepressants, Antipsychotics, Speed for kids (ADHD), Mood Stabilizers and Mental Health For Everyone (don’t talk about drugs).

    If you had to live with PSSD for 1 day!

  14. Change can only occur when the professionals concerned are upfront and honest.
    Coming from a place of authenticity and integrity, allows the person who has been mistreated, to move forward.
    When you are dealing with people, day in day out, we all have a responsibility to treat others the way we would like to be treated.
    When a patient has been damaged by a medicine(s), it needs to be acknowledged and validated.
    You can never judge what cross some of your patients have to endure because of some professionals lack of understanding.
    Sweeping things under the carpet or being in denial of what has happened, does not crate an environment which is beneficial for all concerned.
    In order to learn from lessons and in order for circumstances to improve, honesty, in my opinion is what we all depend on so that favourable outcomes can be achieved for all concerned.
    Some professionals,, have to take the ‘ego’ out of the equation and have to understand from the patients perspective, how it feels to be denied the basic human rights, after a tragedy has occurred.
    If compassion and a change in culture takes place, professionals are not afraid to come forward and apologise to their patients.
    If damage has occurred to the patient and it is permanent, the professional(s) concerned have to understand that the patient is not to blame.
    If anything, the professionals concerned should demonstrate a level of empathy, maturity and compassion because that patients life has been altered dramatically.
    If a patient passes away because of a medicine, honesty somehow does not lessen the blow however, it does not place the blame on the patient or loved ones.
    Pharmaceutical companies, practitioners, pathologists etc……..If there was an element of honesty, there would not need to be walls or barriers created.
    When integrity is nurtured, the necessary changes slowly begin to diffuse into the consciousness of the healer(s) and those who entrust their lives in their hands..
    Researchers, university/college lecturers/professors and the introduction of patients being part of the educational institutions, by talking to medical students about how medicines have impacted them, can certainly be part of the teaching process. If we learn from past mistakes, we can somehow all be part of a change.
    Law can also benefit from being honest. I would love to see lady justice hold the scales , balanced evenly, for once and for all!

    • Thanks Annie, very useful bit of research. Today a bit of Olly’s story is in The Times, having been asked for by Kat Lay, their Health Correspondent. We were asked our reaction to the rise in prescriptions for RoAccutane- isotretinoin, ( as it turns out, she states in her article, 560% ). We said ‘terrifying’. Hers was fair unbiased reporting, I think Olly would approve. Have always tried to keep his story well clear of Press reports till now but felt so desperately sorry for Luke’s parents, trying, just like us nearly 5 years ago to rattle cages and get the world to listen.

      Big Pharma rules the world. Even after the Case Report sited for Olly, ROCHE line up out their chestnut of Megan Taylor who was a MODEL, (my capitals) whose friend the ACTRESS recommended RoAccutane and it saved Megan’s career….seductive words, ‘actress’ and ‘model’….it just sounds like poor Olly was unlucky. Well, he and thousands and thousands of unseen unheard of others. Kat Lay brilliantly got our point across – whilst this (lethal, Russian roulette drug is pushed onto everyone with acne, NO OTHER RESEARCH FOR A SAFE, AFFORDABLE AND EFFECTIVE DRUG FOR ACNE IS BEING DONE.). No one is arguing that acne is not dreadful to live with, far from it. But to heap on top of that the fear that the treatment offered may actually KILL you, (after years of tortuous psychological struggling and being branded as ‘mentally ill’) is absolutely UNACCEPTABLE. Watch out folks, now ROCHE will probably really start trying to discredit us in the media, as we’ve let our heads be seen above the parapet; of course we are not a David Healy, we are tiny fry next to he, but we are still a pesky nuisance. May I say here and now, before witnesses, that my husband David and I will never take our own lives, we have much work still to do,most if anything should happen to us, please ring alarm bells everywhere….

    • Further response to what Annie has alerted us to in The Times, regarding Readers’ Letters in answer to Ed Vaisey MP’s article…
      First, it should be said that Ed Vaisey is the MP of young Jack Bowlby, who died aged only 16, no previous mental illness himself or in his family. He was one of the team of MPs who supported our group of parents when we had a Westminster Hall Debate about the safety of this drug in 2013. I guess Ed will have been prompted to comment, having seen the Times’ article by Lucy Bannerman reporting the death of Luke Reeves and the opening of his Inquest.
      The Readers’ Letters in many cases detail the horror of severe acne, and how RoAccutane cleared their skin and restored their confidence, and no one could doubt their sincerity and the sense in what they write. One says his acne covered every inch of skin and he slept in a pool of blood at night. Our son’s back and chest were like this. No wonder that person and our son took the drug.

      My point, however, is this. If in order to ‘get your confident life back’ ie drive away the horrendous acne lesions, you have to actually RISK your life, then what kind of cruel choice is that, and how can we inflict this on anyone, already suffering. Yes, ROCHE of course they feel suicidal at times about their appearance, but they retain their REASON and ability to weigh things up rationally, search for treatments and go on living. If you are one of the unlucky many who have taken RoAccutane and have been permanently damaged by it or even are now dead, you won’t be writing glowing approval of it on The Times’ Readers’ pages.

      The answer, as we have stressed over and over and OVER again, is to get good research done in our Universities Science departments about:
      a) what really causes acne in its various forms for different people, and
      b) to offer a new, SAFE effective affordable treatment available for all, so that acne can be banished for good.

      But we have a Catch22 situation. The Universities’ research departments are often funded by Big Pharma, particularly by ROCHE, and none of them ( certainly none we’ve approached ) want to get on board. Maybe they’d love to, but they can’t. So RoAccutane remains centre stage in the armoury offered by grateful dermatologists, and as the MHRA told all we parents in a meeting in Portcullis House with Ed Vaisey and others in 2013, it’s very sad about our dead children but they are collateral for all the others whose acne improves. 1 in 10,000 they feel, will die. But we are pretty sure the figure is far higher. And as DH has often pointed out – look at the number of prescriptions and work the figures back. That is one hell of a lot of needless deaths, surely. Nearly 49,000 prescriptions a year currently and rising at the rate of 560% since 2006. Being dished out like sweeties, according to Millie Kleive in The Times yesterday.

      It can’t be allowed to go on. We need tests for CYP450 enzyme routinely right now whilst RoAccutane is being offered (which just might help a little) and we need URGENT action from all sides of Government to facilitate a new SAFE treatment as fast as possible, with no interference from ROCHE.

  15. Carla of course you are right about the need for doctors and health agencies to be open and honest when medicines cause damage to a patient. Unfortunately things really don’t work that way at the moment.

    In fact the doctors and health agency’s can get a lot nastier than you might think if you keep pushing to get answers after being damaged by a drug.

    I found this out after making a complaint to Avon and Wiltshire Partnership, after developing PSSD, and being taken off benzodiazepines too quickly, which ended up in me having a seizure, auditory hallucinations, and a whole strew of other nasty symptoms which took years to completely go away. The psychiatrist had also prescribed two drugs which were contraindicated, and were dangerous to prescribe together, and i was able to prove this. The PHSO ended up claiming that because the psychiatrist didn’t have regular access to a pharmacist, that it was an easy mistake to make (in regards to the drug interaction), and they weren’t going to do anything about it (they didn’t even ask him to apologize even though the co prescribing made me very ill for a number of days).

    My complaint ended up spanning a period of about 6 years.

    I originally didn’t start out wanting to complain, and at first just went a long to my psychiatrist hoping he would see reason that my ongoing sexual problems were caused by citalopram. It was very obvious to me that they had been caused by citalopram, even though i had been off the drug for about a year, when i brought my concerns to the psychiatrist.

    Despite providing him with literature from scientists who study SSRI’s that supported that PSSD exists (literature he at first refused to read), he refused to acknowledge citalopram could have caused the ongoing sexual problems. I got a second opinion, but the second psychiatrist repeated in almost parrot fashion what the first one said, that he didn’t think citalopram could cause lasting sexual problems once you had stopped taking it.

    I knew the citalopram was had caused my ongoing sexual problems, and after not being taken seriously twice, my hand was forced to start the complaints procedure hoping other people might see reason.

    I was in for a shock at just how nasty health agencies and doctors can get when you have a strong argument and you keep pushing them for answers. These are some of the nasty tricks Avon Wiltshire Partnership used over the 6 year complaint to make me go away.

    1 Answering my questions with answers not even relevant to the questions i was asking. Which my SEAP advocate had to repeatedly bring to their attention. This stalled the complaint process and wasted everyone’s time.

    2 Repeatedly avoiding engaging with the post aspect regarding my sexual problems when i specifically asked them to, and instead referring to sexual problems while you are taking citalopram.

    3 Repeated and often large delays in addressing my complaint (i had evidence that they didn’t meet guidelines for responding to my complaint in a timely manner, and which the PHSO ignored, and said that even if there were large delays, it would unlikely change their overall decision)

    4 When my complaint eventually went to the PHSO a medical record appeared (which was sent to the PHSO) which was absent when i requested my medical records. In this medical record another doctor had said that i had complained of my sexual problems a short time before i had ever been prescribed citalopram. This was simply not true. I had no sexual problems whatsoever before taking citalopram. I remember my consulatation with that doctor, and i hadn’t mentioned any sexual problems when i had the consultation with him.

    Also at the time my complaint was going to the PHSO, Avon and Wiltshire partnership got caught altering and falsifying lots of medical records, and if anyone finds that hard to believe here is a link to prove it.30 Social Workers WHISTLEBLOW about Avon & Wiltshire Mental …

    It even made the local news.

    My SEAP advocate told me he has been on a number of cases where the NHS had altered and falsefied records when they were backed into a corner.

    5 Claiming credit for things they did not do. Part of my complaint was that my concerns had not been listened to RE the sexual side effects that had persisted. AWP claimed that the psychiatrist had put me in touch with a pharmacist who specialized in psychiatric drugs. This was not true. This referral to the pharmacist was made by a Rethink support worker who i was seeing. I was able to prove AWP were lying about this, by getting the Rethink workers notes when she referred me. Even though i had evidence they had lied, which the PHSO couldn’t dispute, they said it was unlikely to change their overall decision.

    AWP also claimed the psychiatrist had changed me from citalopram to fluvoxamine in response to my concerns about sexual side effects, as fluvoxamine is reported among SSRI’s to have a lower incidence of sexual side effects. This was not true. The suggestion for fluvoxamine was brought about by a psychologist who told me the SSRI’s fluvoxamine was supposed to be better at treating OCD than the other SSRI’s.

    6 After becoming desperate after years of being told my sexual problems weren’t caused by citalopram, and knowing that they were, i made a suicide attempt. The police who were called out, had to beg the crisis team to speak to me (as the woman on the crisis team didn’t want to discuss the reason i was suicidal, because she was aware of my complaint). When she did eventually speak to me, she was extremely unsympathetic, claimed that if i had really wanted to kill myself i would have done, she said that citalopram couldn’t have caused my sexual problems as i hadn’t taken it for years. She then spoke to my mother and asked her if i had a history of violence ( which i hadn’t). She then told my mum that i was making my mums life difficult, and that my mum should have me arrested and banned from her house.

    7 A doctor who i had never met or heard of sent a letter to the PHSO saying i was a drug addict and i had abused my benzodiazepines. This was simply not true, i took my medication as prescribed, and got physically addicted to benzodiazepines after taking them as prescribed over a number of years.

    8 I was seeing a psychologist for my OCD, but a lot of the time i spent with her was taken up discussing my mental distress at the sexual problems that hadn’t gone away even after being off citalopram for a number of years. She became aware of my complaint and her attitude towards me changed, and she started telling me we needed to spend time working on how my complaint and behaviour was causing people to not want to help me within AWP. She also suggested my act of continuing to complain was part of my OCD illness. It wasn’t, i continued to complain because the problem hadn’t gone away, and no one was taking me seriously.

    9 In one of these sessions with the psychologist, she mentioned that the psychiatrist had done nothing wrong, and again re iterated that we needed to look at how my attitude and behavior was in the wrong. This got me quite angry, as i knew this wasn’t true, and later in the session, after years of frustration at being not listened to i said in exasperation “i’m going to kill him”. It was clear to everyone involved that this wasn’t a serious threat and was said in a moment of exasperation. I even made it clear by the end of the session that i had no intention to try and kill the psychiatrist.

    About a month or so later when a local resolution meeting was planned to try and discuss my complaint, AWP claimed in writing that i had made 3 other separate threats on the psychiatrists life, and that this was the reason they weren’t going to go ahead with the resolution meeting. This was simply not true, and apart from that one threat which i have always been open and honest about, i never made another threat against him. AWP claimed that when i made one of the threats i had phoned up a secretary at the mental health unit and threatened to kill the psychiatrist over the phone. Again this was simply not true. I swear on my life i didn’t do it

    I asked AWP to provide some supporting evidence to back up their claims about these threats, but they couldn’t do so. When i asked the PHSO to look into it, they said the secretary involved was on extended leave and was unavailable for comment. How convenient.

    These are only the main things AWP did to try and make me go away. I am currently abroad and don’t have access to all my notes, but there were some other things they did as well, which aren’t coming into my mind as i write this.

    Throughout the whole complaints process i was going through benzodiazepine withdrawal, which made everything much harder, and at one point i had to ask for a break from the complaint because i was so sick. I had verbal confirmation from the PHSO that this wouldn’t affect my ability to have a review on their decision ( that AWP had done nothing wrong).

    When it came to the time of the review the PHSO completely backtracked on what they had said, and used my delay (which came about because i was too sick going through benzodiazepine withdrawal) as the main reason to not have the review. What a double standard that i was penalized by the PHSO for my delay (which i had a legitimate reason for, unlike the delays by AWP). Also the PHSO didn’t penalise AWP in any way for their delays.

    How ironic that the reason i couldn’t have my review ended up being because of the very behaviour from AWP that i had originally complained about, i.e being taken off benzodiazepines to quickly, and not in accordance with the BNF or NICE guidelines.

    After 6 years the complaint came to absolutely nothing, AWP were cleared of any wrongdoing (despite strong evidence to suggest otherwise), and the PHSO stated in their final response that AWP had done nothing wrong.

    What an utter insult to me, after all the suffering i went through from the PSSD, over rapid benzodiazepine withdrawal, and the drug interaction that made me sick. Also the frustration, and wasted time, and indignity and strong sense of injustice i was left with after seeing the complaint to the end, over a 6 year period.

    The end conclusion regarding my ongoing sexual problems from the PHSO, was that my sexual problems were pre existing to me taking citalopram, and they had seen the medical record to prove it.

    As i mentioned in an earlier comment i found the PHSO actually worse than AWP. But that’s another whole story completely.

  16. They want to affix a label on many awakened souls, so that you are perceived as ‘crazy’, to the outside world. This is so the people don’t begin to question what they have been programmed to believe. CB

  17. Heather and David and Roaccutane ..

    ..“his personality changed after he began to take the drug — becoming irrational, lethargic and reclusive, and eventually suicidal. Their story echoed that of Heather and David Roberts, whose son Olly had Roaccutane prescribed aged 21. Within weeks, they said, “he changed from a cheery, outgoing person, enjoying company, full of ideas and enthusiasm, into a quiet, withdrawn, anxious, young man who began to find tears trickling down his face for no apparent reason”.

    Acne wonder drug

    The victim
    Olly Roberts, 32, killed himself in September 2012 after years of psychiatric problems that his parents say began after he started taking Roaccutane in 2001.

    “However, two years ago, the Medicines and Healthcare products Regulatory Agency issued a rare warning about the drug, which was linked to 20 suicides between 2012 and 2014 alone.”

  18. https://www.ncbi.nlm.nih.gov/pubmed/23352178

    two bits of ‘evidence’ I found recently about PSGA – one aspect of post-psychotropic sexual dysfunction. Never gets mentioned in women but believe me, it exists. I’m interested to note that smoking relieved symptoms in the small case study – which makes me feel a bit better about my tobacco use. I’m pretty sure that smoking relieves many side effects of the antipsychotics in particular, and contributes significantly to the fact that almost everyone I met ‘in the system’ smoked like chimneys.

    • I think you’re probably right about the number of people ‘in the system’ ( your term!) who are smokers – and quite heavy smokers at that, but I’m not sure about this giving relief to antipsychotic side effects. Isn’t the number of smokers a reflection of an attempt at ‘self treatment’ since support from the mental health teams is so hard to access? As we all know, once you’re hooked on tobacco, like many other things, removing that need from your life is difficult – and probably more than an antipsychotic user can attempt in many circumstances. There again, smoking is said to be helpful for cases of colitis – so there lies the possibility of the same being true for antipsychotic side effects I suppose.

  19. On the subject of how the establishment often abuses its power and ignores the damage prescription drugs can cause.

    Here’s a link to a documentary about how the long term damage caused by benzodiazepines was covered up by health agency’s and the government. https://vimeo.com/188181193

    Also here’s an article from 2010 from the independent newspaper explaining how the government knew that benzodiazepines could cause long term damage almost 30 years ago, but they refused to carry out research into the long term effects, and continued to allow them to be prescribed to millions of people.

  20. Dear Spruce,

    Thank you for the video, ‘The Benzodiazepine Medical Disaster.’
    Finally, a video that validates what us sufferers have been shamefully experiencing without the support or acknowledgement from medical professionals, governments and health authorities.
    Shane Kenny eloquently states the following:
    ‘We should not be interfering with the evolutionary process in the brain. We do so at our own peril.’
    ‘There is going to be a high price to pay for the harm and suffering a lot of people have been through.’
    ‘Those who voluntarily take illegal drugs get substantial medical resources from our societies.
    Whilst victims of doctor induced illnesses, from prescribed drugs get little informed state help.
    The legal pharma industry, can and has done, much good making drugs that save lives and alleviate illness.
    But there is NO EXCUSE for scandalous neglect of this pandemic of life destroying pain or suffering benzodiazepines have caused and continue to cause, today.
    There is NO EXCUSE for the ignorance or negligence of the medical profession who often wrongly prescribe them.
    Government and Health authorities, have shamefully failed their societies pandering to Big Pharma because of their economic muscle.
    Academic researchers too, must recognise they have a social responsibility to investigate this disaster.
    It’s long past time that these actors faced up to the truth of the drugs and started doing something about it!’
    I say let the floodgates open wide and let the dams get damaged beyond repair.
    Personal injury lawyers, should fight for plaintiffs who have been severely harmed by these drugs.
    If plaintiffs were given half a chance, perhaps they could make changes to doctors prescribing habits, increase penalty fines to drug companies not placing adequate warnings on the drugs and make medical practitioners pay hefty fines for not informing patients of severe adverse effects.
    In order to improve the safety of these medicines, more legal medical claims should come forward so that the necessary changes can take place.
    What happens if they don’t give you a chance to put one foot through the door?

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